Health related quality of life in children with sickle cell disease: A systematic review and meta-analysis

M Stokoe, HM Zwicker, C Forbes, NELH Abu-Saris… - Blood reviews, 2022 - Elsevier
This review had three aims: 1) describe the measures used to assess health-related quality
of life (HRQL) in pediatric patients diagnosed with sickle cell disease (SCD); 2) document …

Considerations for selecting cognitive endpoints and psychological patient-reported outcomes for clinical trials in pediatric patients with sickle cell disease

AM Hood, LE Crosby, H Stotesbury, M Kölbel… - Frontiers in …, 2022 - frontiersin.org
Pediatric patients with sickle cell disease (SCD) experience a range of medical
complications that result in significant morbidity and mortality. Recent advances in …

Mind the gap: trajectory of cognitive development in young individuals with sickle cell disease: a cross-sectional study

M Koelbel, S Hamdule, FJ Kirkham… - Frontiers in …, 2023 - frontiersin.org
Study objectives Compared to typically developing children and young adults (CYA-TD),
those living with Sickle Cell Disease (CYA-SCD) experience more cognitive difficulties …

[HTML][HTML] Psychological challenges and quality of life in Pakistani parents of children living with thalassemia

AM Hood, A Chaman, Y Chen, S Mufti - Journal of Pediatric Nursing, 2024 - Elsevier
Purpose Children living with thalassemia experience psychological challenges, but despite
significant psychosocial burdens, caregivers' psychological wellbeing and quality of life …

Biopsychosocial predictors of quality of life in paediatric patients with sickle cell disease

AM Hood, M Kölbel, H Stotesbury, J Kawadler… - Frontiers in …, 2021 - frontiersin.org
Sickle cell disease (SCD) refers to a group of inherited blood disorders with considerable
morbidity that causes severe pain, reduces life expectancy, and requires significant self …

The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease

AM Hood, LE Crosby, E Hanson, LM Shook… - Ethnicity & …, 2022 - Taylor & Francis
Objectives: Individuals with sickle cell disease (SCD) experience significant health problems
that may result in unpredictable pain episodes and frequent healthcare utilization …

Academic challenges and school service utilization in children with sickle cell disease

KA Karkoska, K Haber, M Elam, S Strong… - The Journal of …, 2021 - Elsevier
Objectives To describe the academic concerns and risk strata of children with sickle cell
disease (SCD) as identified through a parent-directed screening tool and to compare the …

Decline in Processing Speed Tells Only Half the Story: Developmental Delay in Children Living with Sickle Cell Disease

EJ Walker, FJ Kirkham, AM Hood - Children, 2024 - mdpi.com
Children with sickle cell disease (SCD) may experience cognitive difficulties, including
slowed processing speed. Thus, we investigated if processing speed changes over time …

Executive Function and Processing Speed in Children Living with Sickle Cell Anemia

SC Kelleher, FJ Kirkham, AM Hood - Children, 2023 - mdpi.com
Executive function and processing speed difficulties are observed in children living with
sickle cell anemia (SCA). The influence of processing speed on executive function is not …

Study of montelukast in children with sickle cell disease (SMILES): a study protocol for a randomised controlled trial

AM Hood, H Stotesbury, M Kölbel, M DeHaan… - Trials, 2021 - Springer
Background Young children with sickle cell anaemia (SCA) often have slowed processing
speed associated with reduced brain white matter integrity, low oxygen saturation, and sleep …