Introduction International sharing of health data opens the door to the study of the so-called
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …

Background Health information exchange (HIE), the ability for health information technology
(HIT) to share patient data, can improve the efficiency and effectiveness of healthcare; …

Background Innovations in technology have contributed to rapid changes in the way that
modern biomedical research is carried out. Researchers are increasingly required to …

With the growth of precision medicine research on health data and biospecimens, research
institutions will need to build and maintain long-term, trusting relationships with patient …

Dynamic consent (DC) was originally developed in response to challenges to the informed
consent process presented by participants agreeing to 'future research'in biobanking. In the …

Innovations in data science and artificial intelligence/machine learning (AI/ML) have a
central role to play in supporting global efforts to combat COVID-19. The versatility of AI/ML …

Background Electronic approaches are becoming more widely used to obtain informed
consent for research participation. Electronic consent (e-consent) provides an accessible …

Introduction Clinical data warehouses are often oriented toward integration and exploration
of coded data. However narrative reports are of crucial importance for translational research …

Background: Use of patients' medical data for secondary purposes such as health research,
audit, and service planning is well established in the UK. However, the governance …

Background The needs and benefits of sharing health data to advance scientific research
and improve clinical benefits have been well documented in recent years, specifically in the …