Background There has been a recent and, for many within the chronic pain space, long
overdue increase in literature that focuses on the role of equity, diversity, inclusion, and …

Background Chronic non‐cancer pain in childhood is widespread, affecting 20% to 35% of
children and young people worldwide. For a sizeable number of children, chronic non …

Background Sickle Cell Disease (SCD) is a progressive genetic disease that causes organ
damage and reduces longevity. Hydroxyurea is an underutilized evidence-based …

This educational program outlines the importance of evolving clinical care models in
response to increased life expectancy and variability in individual patient experiences …

We aimed to learn the experiences of clinicians and adolescents and young adults with
sickle cell disease (AYA-SCD) with managing their disease at home and making medical …

Sickle cell disease (SCD), the most common inherited blood disorder in the US, is an illness
community with egregious inequities. In this single case study, we interviewed four …

Background Healthcare transition (HCT) is the process of moving a patient from pediatric,
parent-supervised care to an independent, adult-centered model. This study assesses …

Background Transition in sickle cell disease (SCD) is associated with an alarming increase
in acute care utilization, cost, and risk of early mortality. Effective transition preparation is …

Abstract Chronic pain impacts 11-33% of children and will continue into adulthood for over
half of them. Transition of pain management to adult care is crucial given high risk of …

Sickle cell disease (SCD) presents unique challenges for youth transitioning from pediatric
to adult health care systems. This study aimed to identify and address unmet needs in …