Pathology reports contain the essential data for both clinical and research purposes.
However, the extraction of meaningful, qualitative data from the original document is difficult …

Background: Common Data Elements (CDEs) are data-metadata descriptors used to collect
research study data. CDEs facilitate the collection, processing, and sharing of breast cancer …

General frameworks of the cancer screening process are available, but none directly
compare the process in detail across different organ sites. This limits the ability of medical …

Background: Technological advances in clinical informatics have made large amounts of
data accessible and potentially useful for research. As a result, a burgeoning literature …

Background Medical research to improve health care faces a major problem in the relatively
limited availability of adequately annotated and collected biospecimens. This limitation is …

PURPOSE: The purpose of this study is to investigate the feasibility of applying the
openEHR archetype approach to modelling the data in the database of an existing …

Abstract The PaTH (University of Pittsburgh/UPMC, Penn State College of Medicine, Temple
University Hospital, and Johns Hopkins University) clinical data research network initiative is …

Objective Rare disease research requires data sharing networks to power translational
studies. We describe novel use of Research Electronic Data Capture (REDCap), a web …

The linkage between the clinical and laboratory research domains is a key issue in
translational research. Integration of clinicopathologic data alone is a major task given the …

Context.—Biospecimens must have appropriate clinical annotation (data) to ensure optimal
quality for both patient care and research. Clinical preanalytic variables are the focus of this …