Families of children with congenital heart disease: A literature review

H Wei, CI Roscigno, CC Hanson, KM Swanson - Heart & lung, 2015 - Elsevier
Abstract In 2000 and 2002, the National Heart, Lung, and Blood Institute launched two
initiatives to encourage treatment innovations and research on children with heart disease …

Quality of life for parents of children with congenital heart defect: A systematic review

MRB Gregory, PM Prouhet, CL Russell… - Journal of …, 2018 - journals.lww.com
Background: As survival rates for infants born with severe forms of cardiac defects
(congenital heart defect [CHD]) improve, attention is directed to evaluating factors that affect …

Maternal stress and anxiety in the pediatric cardiac intensive care unit

AJ Lisanti, LR Allen, L Kelly, B Medoff-Cooper - American Journal of Critical …, 2017 - AACN
Background Mothers whose infants are born with complex congenital heart disease (CCHD)
experience stress during their infant's hospitalization in a pediatric cardiac intensive care …

Parenting stress and children with heart disease

K Uzark, K Jones - Journal of pediatric health care, 2003 - Elsevier
Introduction: Whereas the stress precipitated by the diagnosis of an infant's congenital
abnormality is well recognized, this study examined parenting stress reported by parents of …

Parenting under pressure: A grounded theory of parenting young children with life‐threatening congenital heart disease

GR Rempel, V Ravindran, LG Rogers… - Journal of advanced …, 2013 - Wiley Online Library
rempel gr, ravindran v., rogers lg & magill‐evans j.(2013) Parenting under pressure: a
grounded theory of parenting young children with life‐threatening congenital heart disease …

Stress and quality of life among parents of children with congenital heart disease referred for psychological services

A Kaugars, C Shields, C Brosig - Congenital heart disease, 2018 - Wiley Online Library
Objective The study examined parent stress and health‐related quality of life (HRQOL)
among families of children with congenital heart disease (CHD) referred for psychological …

Motor development in children with congenital cardiac diseases compared to their healthy peers

B Bjarnason-Wehrens, S Dordel… - Cardiology in the …, 2007 - cambridge.org
Their perceptual and motor experiences determine the physical and motor development of
children, and impact also on their emotional, psychosocial, and cognitive development. Our …

Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease

N Doherty, CG McCusker, B Molloy… - … of Reproductive and …, 2009 - Taylor & Francis
This study examined mental health and coping styles in both mothers and fathers of infants
born with a severe congenital heart defect. Factors associated with mental health outcomes …

Parents of children with physical disabilities–perceived health in parents related to the child's sleep problems and need for attention at night

E Mörelius, H Hemmingsson - Child: care, health and …, 2014 - Wiley Online Library
Background Approximately half of all children with moderate to severe physical disabilities
have persistent sleep problems and many of these children need parental attention at night …

The pediatric cardiac intensive care unit parental stress model: refinement using directed content analysis

AJ Lisanti, N Golfenshtein… - Advances in Nursing …, 2017 - journals.lww.com
This descriptive, qualitative study used directed content analysis to explore and clarify
specific foci of parental stress for mothers of infants with complex congenital heart disease in …