Background Advances in diagnostic and therapeutic interventions for rare diseases result in
greater survival rates, with on the flipside an expanding group of children with medical …

Background A systematic literature review on the transition from hospital-to-home (H2H) of
families with a child with medical complexity (CMC), resulted in nine overarching themes …

With improvements in neonatal and paediatric care, more children living with complex care
needs are surviving beyond infancy into late childhood and adulthood than in the past. We …

Background Caregivers of children and youth with complex care needs (CCN) require
substantial support to ensure the well-being of their families. Web-based peer-to-peer (P2P) …

Background Integration of care for children with complex care needs is developing slowly
internationally. There remains wide variation in the governance of, and access to, care for …

Background Children with medical complexity (CMC) comprise 1% of the paediatric
population, but account for over 30% of health service costs. Lack of healthcare integration …

Background Improved survival has led to increasing numbers of children with life-limiting
conditions transitioning to adult healthcare services. There are concerns that transition may …

Background There is increasing evidence that integrated care improves child related quality
of life and reduces health service use. However, there is limited evidence on family …

Abstract Children with Medical Complexity (CMC) often require 24/7 expert care, which may
impede discharge from hospital to home (H2H) resulting in prolonged admission. Limited …

This paper highlights the need for nursing-sensitive indicators tailored to children and young
people with complex and integrated care needs. While nursing plays a pivotal role in …