A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability

A Fairfax, J Brehaut, I Colman, L Sikora, A Kazakova… - BMC pediatrics, 2019 - Springer
Background Parents of children with chronic illness have reported decreased psychological
and physical quality of life (QoL) relative to parents of children without such illness, which …

Evaluation of postural stability in children: current theories and assessment tools

SL Westcott, LP Lowes, PK Richardson - Physical therapy, 1997 - academic.oup.com
Children with many types of motor dysfunction have problems maintaining postural stability.
Because maintenance of postural stability is an integral part of all movements, therapists …

[HTML][HTML] An intervention for sensory difficulties in children with autism: A randomized trial

RC Schaaf, T Benevides, Z Mailloux, P Faller… - Journal of autism and …, 2014 - Springer
This study evaluated a manualized intervention for sensory difficulties for children with
autism, ages 4–8 years, using a randomized trial design. Diagnosis of autism was confirmed …

Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results

U Ravens-Sieberer, M Bullinger - Quality of life research, 1998 - Springer
Health-related quality of life is increasingly being considered as a relevant end-point and
outcome criterion in evaluating the effects of medical treatment. While in adults quality of life …

The health and well-being of caregivers of children with cerebral palsy

P Raina, M O'Donnell, P Rosenbaum, J Brehaut… - …, 2005 - publications.aap.org
Objective. Most children enjoy healthy childhoods with little need for specialized health care
services. However, some children experience difficulties in early childhood and require …

[图书][B] Gross motor function measure (GMFM-66 & GMFM-88) users manual

DJ Russell, P Rosenbaum, M Wright, LM Avery - 2002 - acuresearchbank.acu.edu.au
Gross Motor Function Measure (GMFM-66 & GMFM-88) users manual : Research Bank Skip
to content Australian Catholic University Home About People Research areas Latest …

Improved scaling of the gross motor function measure for children with cerebral palsy: evidence of reliability and validity

DJ Russell, LM Avery, PL Rosenbaum… - Physical …, 2000 - academic.oup.com
Abstract Background and Purpose. This study examined the reliability, validity, and
responsiveness to change of measurements obtained with a 66-item version of the Gross …

[HTML][HTML] Pompe disease diagnosis and management guideline

PS Kishnani, RD Steiner, D Bali, K Berger, BJ Byrne… - Genetics in …, 2006 - Elsevier
Disclaimer: ACMG standards and guidelines are designed primarily as an educational
resource for physicians and other health care providers to help them provide quality medical …

Effects of a functional therapy program on motor abilities of children with cerebral palsy

M Ketelaar, A Vermeer, H Hart… - Physical …, 2001 - academic.oup.com
Abstract Background and Purpose. The purpose of this study was to determine whether the
motor abilities of children with spastic cerebral palsy who were receiving functional physical …

ABILHAND-Kids: a measure of manual ability in children with cerebral palsy

C Arnould, M Penta, A Renders, JL Thonnard - Neurology, 2004 - AAN Enterprises
Objective: To develop a clinical tool for measuring manual ability (ABILHAND-Kids) in
children with cerebral palsy (CP) using the Rasch measurement model. Methods: The …