[HTML][HTML] Views, use, and experiences of web-based access to pediatric electronic health records for children, adolescents, and parents: scoping review

J Hagström, C Blease, B Haage, I Scandurra… - Journal of Medical …, 2022 - jmir.org
Background Ongoing efforts worldwide to provide patients with patient-accessible electronic
health records (PAEHRs) have led to variability in adolescent and parental access across …

Patient portals to support care partner engagement in adolescent and adult populations: a scoping review

KT Gleason, D Peereboom, A Wec… - JAMA Network Open, 2022 - jamanetwork.com
Importance Family and other unpaid care partners may bridge accessibility challenges in
interacting with the patient portal, but the extent and nature of this involvement is not well …

[HTML][HTML] The 21st Century Cures Act and multiuser electronic health record access: potential pitfalls of information release

S Arvisais-Anhalt, M Lau, CU Lehmann… - Journal of medical …, 2022 - jmir.org
Although the Office of The National Coordinator for Health Information Technology's (ONC)
Information Blocking Provision in the Cures Act Final Rule is an important step forward in …

21st Century Cures Act ONC rule: implications for adolescent care and confidentiality protections

RH Pasternak, EM Alderman, A English - Pediatrics, 2023 - publications.aap.org
Ensuring the confidentiality and protection of health information is the standard of care for
adolescents. In 2023 and beyond, the protection of personal health information is more …

Ensuring adolescent patient portal confidentiality in the age of the cures act final rule

J Xie, T McPherson, A Powell, P Fong, A Hogan… - Journal of Adolescent …, 2021 - Elsevier
Purpose Managing confidential adolescent health information in patient portals presents
unique challenges. Adolescent patients and guardians electronically access medical …

Engaging adolescents in using online patient portals

BA Sisk, AL Antes, C Bereitschaft, M Enloe… - JAMA network …, 2023 - jamanetwork.com
Importance Many health care systems offer adolescents access to health information
through online patient portals, but few studies have explored how to engage adolescents in …

Challenges to developing and implementing policies for adolescent online portal access

BA Sisk, AL Antes, C Bereitschaft, M Enloe… - …, 2023 - publications.aap.org
BACKGROUND After enactment of the 21st Century Cures Act, many health care systems
offer adolescents and parents access to electronic health information through online portals …

[HTML][HTML] Security and Privacy of Online Record Access: A Survey of Adolescents' Views and Experiences in Sweden

J Hagström, RM Åhlfeldt, C Blease, Å Cajander… - Journal of Adolescent …, 2024 - Elsevier
Purpose Ensuring security of online health records and patients' perceptions of security are
concerns in adolescent healthcare. Little is known about adolescents' perceptions about …

Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act

S Sinha, M Bedgood, R Puttagunta… - Journal of the …, 2023 - academic.oup.com
Objective To describe real-world practices and variation in implementation of the Information
Blocking provisions amongst healthcare organizations caring for pediatric patients. Materials …

[HTML][HTML] Digital health equity: Addressing power, usability, and trust to strengthen health systems

H Koehle, C Kronk, YJ Lee - Yearbook of Medical Informatics, 2022 - thieme-connect.com
Background: Without specific attention to health equity considerations in design,
implementation, and evaluation, the rapid expansion of digital health approaches threatens …