Disorders of consciousness: ethical issues of diagnosis, treatment, and prognostication

S Septien, MA Rubin - Seminars in neurology, 2018 - thieme-connect.com
Consciousness defines our humanity more than any other biologic phenomena that a
clinician might be called upon to examine, diagnose, or treat. When family comes to the …

The psychological impact of prolonged disorders of consciousness on caregivers: a systematic review of quantitative studies

SM Soeterik, S Connolly, ED Playford… - Clinical …, 2017 - journals.sagepub.com
Objective: Systematic review of the nature, frequency and severity of psychological
experiences of people who have a close relationship with a person with a prolonged …

Family caregivers' opinions about interaction with the environment in consciousness disorders.

P Moretta, L Trojano, O Masotta… - Rehabilitation …, 2017 - psycnet.apa.org
Objectives: To assess family caregivers' opinions about level of interaction with the
environment in their relatives with disorders of consciousness (DOCs) and to explore …

Early shared decision-making for older adults with traumatic brain injury: using time-limited trials and understanding their limitations

SP Miranda, RS Morris, M Rabas, CJ Creutzfeldt… - Neurocritical care, 2023 - Springer
Older adults account for a disproportionate share of the morbidity and mortality after
traumatic brain injury (TBI). Predicting functional and cognitive outcomes for individual older …

Barriers and facilitators linked to discharge destination following inpatient rehabilitation after traumatic brain injury in older adults: a qualitative study

G Souesme, M Voyer, É Gagnon… - Disability and …, 2022 - Taylor & Francis
Purpose To identify facilitators and barriers associated with returning home for older adults
having received inpatient rehabilitation after traumatic brain injury (TBI). Methods A …

How acceptable is paternalism? A survey-based study of clinician and nonclinician opinions on paternalistic decision making

K Bailoor, T Valley, C Perumalswami… - AJOB empirical …, 2018 - Taylor & Francis
We conducted an empirical study to explore clinician and lay opinions on the acceptability of
physician paternalism. Respondents read a vignette describing a patient with brain …

The social and family evaluation (SAFE) scale for caregivers of individuals with disorders of consciousness: preliminary results

FG Magnani, M Cacciatore, F Barbadoro, C Ippoliti… - Neurological …, 2024 - Springer
Background Caregivers' involvement in the diagnostic and monitoring processes of the level
of consciousness of patients with Disorders of Consciousness (DoC) is strongly encouraged …

Perception of diagnosis by family caregivers in severe brain injury patients in China

Y Yan, M Li, J Annen, W Huang, T Cai, X Wang… - BMC Palliative Care, 2024 - Springer
Objectives Surrogate decision-making by family caregivers for patients with severe brain
injury is influenced by the availability and understanding of relevant information and …

Whither the “Improvement Standard”? Coverage for Severe Brain Injury after Jimmo v. Sebelius

JJ Fins, MS Wright, C Kraft, A Rogers… - The Journal of Law …, 2016 - journals.sagepub.com
As improvements in neuroscience have enabled a better understanding of disorders of
consciousness as well as methods to treat them, a hurdle that has become all too prevalent …

Psychological distress is associated with altered cognitive functioning in family caregivers of patients with disorders of consciousness

P Moretta, O Masotta, E Crispino, G Castronovo… - Brain injury, 2017 - Taylor & Francis
Objectives: To analyse the possible presence of reduced cognitive efficiency in family
caregivers of patients with prolonged disorders of consciousness (DOC). Subjects: The …