How can advance care planning tools help young people's voices be heard?

J Trang, A Herbert… - Journal of Paediatrics and …, 2022 - Wiley Online Library
The integration of the child or young person (CYP) in conversations around advance care
planning (ACP) is an important area of paediatric practice. These discussions provide CYP …

Competencies for psychology practice in pediatric palliative care

AL Thompson, MR Schaefer… - Journal of pediatric …, 2023 - academic.oup.com
Objective Pediatric psychologists have unique expertise to contribute to the care of youth
with serious illnesses yet are not routinely integrated into pediatric palliative care (PPC) …

POMSNAME: an aide-mémoire to improve the assessment and documentation of palliative care–a longitudinal project

A Dadich, M Gliniecka, M Cull, K Womsley - BMC Palliative Care, 2023 - Springer
Background Evidence-based palliative care requires comprehensive assessment and
documentation. However, palliative care is not always systemically documented–this can …

Caring for depression in the dying is complex and challenging–survey of palliative physicians

W Lee, S Chang, M DiGiacomo, B Draper, MR Agar… - BMC Palliative Care, 2022 - Springer
Background Depression is prevalent in people with very poor prognoses (days to weeks).
Clinical practices and perceptions of palliative physicians towards depression care have not …

Attachment as a mechanism influencing end-of-life communication: An analogue investigation

HE Evans, UM Sansom-Daly, RA Bryant - Plos one, 2024 - journals.plos.org
Talking about dying when faced with end-of-life may be important for achieving optimal
outcomes for young people and their families. Given the lack of research on young people's …

Psychologists as pivotal members of the pediatric palliative care team

AL Thompson, RA Kentor, MR Schaefer… - Journal of pain and …, 2024 - Elsevier
Context Pediatric psychologists possess unique expertise to positively impact the care
provided to children with serious illness and their families. Despite increasing recognition …

Enabling psychologists to address the psychological consequences of cancer

N Zomerdijk, C Bryant, L Beatty - Australian Psychologist, 2023 - Taylor & Francis
The number of people diagnosed with cancer in Australia continues to rise, with more than 1
in 22 Australians now living with a history of cancer. This increase is occurring in parallel …

Psychosocial Needs of People Living With Pleural Mesothelioma and Family Carers: A Mixed Methods Study

LJ Breen, A Same, CJ Peddle‐McIntyre… - Psycho …, 2024 - Wiley Online Library
Background Mesothelioma is a cancer of growing global incidence, especially in developing
countries, with unique complex psychosocial impacts on patients and their carers. Aims To …

Alignment of palliative care service structure and standards of care for adolescents and young adults with cancer: an international survey of clinical practice

UM Sansom-Daly, HE Evans, AS Darlington… - Journal of Palliative …, 2024 - liebertpub.com
Background: Access to timely, age-appropriate palliative care services and end-of-life
communication are two standards of care for adolescents and young adults (AYAs) living …

Life beyond Loss: A Retrospective Analysis of the Impact of Meaning of Life Therapy on the Grieving Process of Cancer Patients' Family Caregivers

MJ Freitas, S Remondes-Costa, E Veiga, G Macedo… - Healthcare, 2024 - mdpi.com
Oncological disease in the palliative stage is a huge challenge for patients and their family
caregivers (FCs) due to the fact that it confronts them with death, as well as physical …