Differences between the 2016 and 2022 editions of the enhanced recovery after bariatric surgery (ERABS) guidelines: call to action of FAIR data and the creation of a …
B Torensma, M Hisham, AA Eldawlatly, M Hany - Obesity Surgery, 2022 - Springer
Abstract In 2016, the Enhanced Recovery After Bariatric Surgery guidelines (G16) was
published, and in 2022, an update to it was released (G22). Grading of recommendations …
published, and in 2022, an update to it was released (G22). Grading of recommendations …
Harmonization and standardization of data for a pan-European cohort on SARS-CoV-2 pandemic
The European project ORCHESTRA intends to create a new pan-European cohort to rapidly
advance the knowledge of the effects and treatment of COVID-19. Establishing processes …
advance the knowledge of the effects and treatment of COVID-19. Establishing processes …
Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic
N Queralt-Rosinach, R Kaliyaperumal… - Journal of biomedical …, 2022 - Springer
Background The COVID-19 pandemic has challenged healthcare systems and research
worldwide. Data is collected all over the world and needs to be integrated and made …
worldwide. Data is collected all over the world and needs to be integrated and made …
Semantic interoperability: ontological unpacking of a viral conceptual model
Background Genomics and virology are unquestionably important, but complex, domains
being investigated by a large number of scientists. The need to facilitate and support work …
being investigated by a large number of scientists. The need to facilitate and support work …
Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European Reference Network registries
Introduction Rare disease patient data are typically sensitive, present in multiple registries
controlled by different custodians, and non-interoperable. Making these data Findable …
controlled by different custodians, and non-interoperable. Making these data Findable …
Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their …
ABSTRACT Since 2014,“Bring Your Own Data” workshops (BYODs) have been organised to
inform people about the process and benefits of making resources Findable, Accessible …
inform people about the process and benefits of making resources Findable, Accessible …
The de novo FAIRification process of a registry for vascular anomalies
KHJ Groenen, A Jacobsen, MG Kersloot… - Orphanet journal of rare …, 2021 - Springer
Background Patient data registries that are FAIR—Findable, Accessible, Interoperable, and
Reusable for humans and computers—facilitate research across multiple resources. This is …
Reusable for humans and computers—facilitate research across multiple resources. This is …
Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data
R Kaliyaperumal, MD Wilkinson, PA Moreno… - Journal of biomedical …, 2022 - Springer
Abstract Background The European Platform on Rare Disease Registration (EU RD
Platform) aims to address the fragmentation of European rare disease (RD) patient data …
Platform) aims to address the fragmentation of European rare disease (RD) patient data …
[HTML][HTML] Creation of Standardized Common Data Elements for Diagnostic Tests in Infectious Disease Studies: Semantic and Syntactic Mapping
C Stellmach, SM Hopff, T Jaenisch… - Journal of Medical …, 2024 - jmir.org
Background It is necessary to harmonize and standardize data variables used in case report
forms (CRFs) of clinical studies to facilitate the merging and sharing of the collected patient …
forms (CRFs) of clinical studies to facilitate the merging and sharing of the collected patient …
[HTML][HTML] The international society for the study of vascular anomalies (ISSVA) ontology
Abstract The International Society for the Study of Vascular Anomalies (ISSVA) provides a
classification for vascular anomalies that enables specialists to unambiguously classify …
classification for vascular anomalies that enables specialists to unambiguously classify …