Changing patterns in the epidemiology of β‐thalassemia

A Kattamis, GL Forni, Y Aydinok… - European Journal of …, 2020 - Wiley Online Library
Abstract β‐thalassemia major is an inherited hemoglobinopathy that requires lifelong red
blood cell transfusions and iron chelation therapy to prevent complications due to iron …

Beta thalassemia: Looking to the future, addressing unmet needs and challenges

M Angastiniotis - Annals of the New York Academy of Sciences, 2024 - Wiley Online Library
Thalassemia management has reached new milestones, with new therapies promising the
dawning of a new era. However, conventional and new approaches require accessibility …

[HTML][HTML] Immigration and screening programs for hemoglobinopathies in Italy, Spain and Turkey

D Canatan, JLV Corrons, G Piacentini… - Acta Bio Medica …, 2021 - ncbi.nlm.nih.gov
Sickle cell disease (SCD) and thalassemias are the most common monogenic diseases in
the world. The number of migrants and refugees in Europe and Turkey, in the past decade …

Global burden and unmet needs in the treatment of transfusion-dependent β-thalassemia

GL Forni, G Grazzini, J Boudreaux, V Agostini… - Frontiers in …, 2023 - frontiersin.org
Beta thalassemia (β-thalassemia) is part of a group of inherited hemoglobinopathies caused
by a mutation in the beta globin gene, leading to minimal functional hemoglobin and …

Effectiveness of the application of an educational program based on the Theory of Planned Behavior (TPB) in adopting preventive behaviors among mothers who …

I Zareban, Z Oudi-Akbari, MS Jadgal, H Ansari… - Egyptian Journal of …, 2024 - Springer
Background Thalassemia is one of the most common chronic diseases, which cause many
problems for the patients, families, and health system. The aim of this study was to evaluate …

Pediatric healthcare utilization in a large cohort of refugee children entering Western Europe during the migrant crisis

C Happle, C Dopfer, D Ernst, E Kleinert… - International Journal of …, 2019 - mdpi.com
Background: Currently, half of the population displaced worldwide is children and
adolescents. Little is known on healthcare demand in underage migrants. Materials and …

[HTML][HTML] The Spectrum of beta-thalassemia mutations in Syrian refugees and Turkish citizens

AK Gunes, HE Gozden - Cureus, 2021 - ncbi.nlm.nih.gov
Results Of the participants, 35 patients (70%) were Turkish citizens and 15 patients (30%)
were Syrian. The most common mutation in Turkish patients was found to be IVS-I-110 (G> …

Hematopoietic stem cell transplantation activities and HRQOL of refugee or asylum seeker children in Turkey: A multicenter study

D Gurlek Gokcebay, S Küpeli, O Gürsel… - Pediatric …, 2022 - Wiley Online Library
Background Refugee or asylum seekers (RAS) children are at increased risk of physical,
developmental, and behavioral health issues. The aim of this study was to evaluate clinical …

A wireless magnetoelastic DNA-biosensor amplified by AuNPs for the detection of a common mutated DNA causing β-thalassaemia

X Guo, J Wang, Y Zhao, R Liu, Q Zhang, Z Yuan… - Biochemical …, 2020 - Elsevier
Abstract β-Thalassaemia is an inherited blood disorder with serious complications.
Combining the unique advantages of DNA and magnetoelastic (ME) materials, an ME DNA …

Using Comfort Theory for Addressing the Psychosocial Needs of an Afghan Refugee Child with Thalassemia: A Case Report

F Ebrahimpour, J Mirlashari - Global Pediatric Health, 2024 - journals.sagepub.com
Psychological and social support is one of the factors that promote resilience in refugee
children. Immigrant children with thalassemia have special psychosocial needs in the host …