The last decade has seen a range of health policy initiatives relating to personalised medicine. There is an emerging body of studies that demonstrates the continued importance …
Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with …
A Cool - Social Studies of Science, 2019 - journals.sagepub.com
On May 25, 2018, the European Union's General Data Protection Regulation (GDPR) came into force. EU citizens are granted more control over personal data while companies and …
I Helén, H Lehtimäki - European Journal of Innovation Management, 2023 - emerald.com
Purpose The paper contributes to the discussion on valuation in organization studies and strategic management literature. The nascent literature on valuation practices has examined …
Amid the rapid growth of precision medicine and biobanking initiatives, there have been few efforts at cataloging the implications of these initiatives for Indigenous communities. A …
K Snell, H Tarkkala - Life Sciences, Society and Policy, 2019 - Springer
According to surveys and opinion polls, citizens in Nordic welfare societies have positive, supportive attitudes towards medical research and biobanking. In Finland, it was expected …
V Lipphardt, GA Rappold, M Surdu - Science in Context, 2021 - cambridge.org
Moreau (2019) has raised concerns about the use of DNA data obtained from vulnerable populations, such as the Uighurs in China. We discuss another case, situated in Europe and …
EK Burton - Social studies of science, 2018 - journals.sagepub.com
Most Middle Eastern populations outside Israel have not been represented in Western- based international human genome sequencing efforts. In response, national-level projects …
H Tarkkala, K Snell - Humanities and Social Sciences Communications, 2022 - nature.com
Science and science policy are characterised by expectations. These expectations—as in the field of biomedicine—may be related to describing novel findings, their use in curing …