[HTML][HTML] Underrecording and underreporting of participant ethnicity in clinical trials is persistent and is a threat to inclusivity and generalizability

N Wallace, S O'Keeffe, H Gardner, F Shiely - Journal of Clinical …, 2023 - Elsevier
Objectives People from ethnic minority groups are underserved by randomized trials, and
poor representation of these groups reduces generalizability of results. There is no guidance …

Strategies to record and use ethnicity information in routine health data

A Routen, A Akbari, A Banerjee, SV Katikireddi… - Nature medicine, 2022 - nature.com
Strategies to record and use ethnicity information in routine health data | Nature Medicine
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JBI systematic review protocol of text/opinions on how to best collect race-based data in healthcare contexts

C Quan, N Clark, CL Costigan, J Murphy, M Li… - BMJ open, 2023 - bmjopen.bmj.com
Introduction Racialized population groups have worse health outcomes across the world
compared with non-racialized populations. Evidence suggests that collecting race-based …

Accuracy of routinely recorded ethnic group information compared with self-reported ethnicity: evidence from the English Cancer Patient Experience survey

CL Saunders, GA Abel, A El Turabi, F Ahmed… - BMJ open, 2013 - bmjopen.bmj.com
Objective To describe the accuracy of ethnicity coding in contemporary National Health
Service (NHS) hospital records compared with the 'gold standard'of self-reported ethnicity …

Building a foundation to reduce health inequities: routine collection of sociodemographic data in primary care

AD Pinto, G Glattstein-Young… - The Journal of the …, 2016 - Am Board Family Med
Introduction: Detailed data on social determinants of health can facilitate the identification of
inequities in access to health care. We report on a sociodemographic data collection tool …

Dietary intake and factors influencing eating behaviours in overweight and obese South Asian men living in the UK: mixed method study

A Emadian, CY England, JL Thompson - BMJ open, 2017 - bmjopen.bmj.com
Objective It is widely recognised that South Asian men living in the UK are more likely to
develop type 2 diabetes mellitus (T2DM) than their white British counterparts. Despite this …

Exploring ethnicity dynamics in Wales: a longitudinal population-scale linked data study and development of a harmonised ethnicity spine

A Akbari, F Torabi, S Bedston, E Lowthian… - BMJ open, 2024 - bmjopen.bmj.com
Objective This study aims to create a national ethnicity spine based on all available ethnicity
records in linkable anonymised electronic health record and administrative data sources …

South Asian ethnicity, socioeconomic status, and psychological mediators of faecal occult blood colorectal screening participation: A prospective test of a process …

S Orbell, A Szczepura, D Weller, A Gumber… - Health …, 2017 - psycnet.apa.org
Objective: Although ethnicity and socioeconomic status (SES) correlate with health
inequality, efforts to explain variance in health behavior attributable to these factors are …

Engagement barriers and service inequities in the NHS Breast Screening Programme: Views from British-Pakistani women

VG Woof, H Ruane, F Ulph, DP French… - Journal of medical …, 2020 - journals.sagepub.com
Objectives Previous research has largely attempted to explore breast screening experiences
of South Asian women by combining opinions from Pakistani, Bangladeshi, and Indian …

Recent migrants' perspectives on antibiotic use and prescribing in primary care: a qualitative study

A Lindenmeyer, S Redwood, L Griffith, S Ahmed… - British Journal of …, 2016 - bjgp.org
Background Currently there is great interest in antibiotic prescribing practices in the UK, but
little is known about the experiences of the increasing numbers of recent migrants (those …