Anxiety, depression, and mental health-related quality of life in survivors of pediatric allogeneic hematopoietic stem cell transplantation: a systematic review

G Di Giuseppe, N Thacker, T Schechter… - Bone Marrow …, 2020 - nature.com
Allogeneic hematopoietic stem cell transplantation (allo-HSCT) has become increasingly
used as a therapeutic treatment for several pediatric conditions, however the long-term …

Psychosocial challenges and health-related quality of life of adolescents and young adults with hematologic malignancies

O Husson, PC Huijgens… - Blood, The Journal of …, 2018 - ashpublications.org
Adolescents and young adults (AYAs) occupy a unique place within the hematologic
malignancy community due to the challenges they face related to their disease biology and …

Unmet social support needs among older adults with cancer

GR Williams, M Pisu, GB Rocque, CP Williams… - Cancer, 2019 - Wiley Online Library
Background Adequate social support for older adults is necessary to maintain quality of life
and reduce mortality and morbidity. However, little is known regarding the social support …

Implementation of acute care patient portals: recommendations on utility and use from six early adopters

LV Grossman, SW Choi, S Collins… - Journal of the …, 2018 - academic.oup.com
Objective To provide recommendations on how to most effectively implement advanced
features of acute care patient portals, including:(1) patient-provider communication,(2) care …

The experience of patients with hematological malignancy in their terminal stage: a phenomenological study from Jordan's perspective

MM Alnaeem, A Shehadeh, AJ Nashwan - BMC Palliative Care, 2024 - Springer
Background Patients diagnosed with hematological malignancies residing in low-middle-
income countries undergo significant physical and psychological stressors. Despite this …

[HTML][HTML] BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation

L Runaas, D Hanauer, M Maher, E Bischoff… - Biology of Blood and …, 2017 - Elsevier
Health information technology (HIT) has great potential for increasing patient engagement.
Pediatric hematopoietic cell transplantation (HCT) is a setting ripe for using HIT but in which …

“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells …

M Parisek, J Loss, E Holler, A Barata… - Frontiers in Public …, 2021 - frontiersin.org
Background: Allogeneic hematopoietic stem cell transplantation (alloHSCT) is the only
curative treatment modality for many patients affected by hematologic malignancies …

Use of the supportive care framework to explore haematological cancer survivors' unmet needs: a qualitative study

A Herrmann, E Mansfield, F Tzelepis, M Lynagh… - BMC Health Services …, 2020 - Springer
Background Some sub-types of haematological cancers are acute and require intensive
treatment soon after diagnosis. Other sub-types are chronic, relapse over many years and …

Sharing clinical notes with hospitalized patients via an acute care portal

LV Grossman, RM Creber, S Restaino… - AMIA annual …, 2018 - pmc.ncbi.nlm.nih.gov
Though several institutions offer hospitalized patients access to their medical records
through acute care patient portals, no studies have assessed the potential impact of patients' …

[HTML][HTML] Promoting health and well-being through mobile health technology (Roadmap 2.0) in family caregivers and patients undergoing hematopoietic stem cell …

M Rozwadowski, M Dittakavi, A Mazzoli… - JMIR research …, 2020 - researchprotocols.org
Background Cancer patients who undergo allogeneic hematopoietic stem cell
transplantation are among the most medically fragile patient populations with extreme …