Background To capture the broad range of treatment burden issues experienced by
adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience …

Background Hemophilia is a high cost low volume disease. Resource limited nations (RLN)
usually spend very little on health budget and most of it is spent in dealing with common …

Study Design. Retrospective cohort study. Objective. To assess if initial adherence to
prescribed brace wear for adolescent idiopathic scoliosis (AIS) predicts future adherence …

Introduction Prophylactic replacement therapy (prophylaxis) in patients with haemophilia
(PWH) requires lifelong, frequent (self) infusions. Prophylaxis effectiveness depends on …

Introduction HaemoassistTM 2 is an electronic system designed for people with bleeding
disorders and their physicians to record prophylactic infusions and treatment of bleeds. It …

Аннотация «Золотым стандартом» терапии гемофилии уже 60 лет остается
применение концентратов факторов. В последние годы отмечается бурное развитие …

Background: This study aims to identify factors affecting health-related quality of life
(HRQoL) in Chinese patients with hemophilia in Hong Kong, and to examine the association …

Background Medication adherence is an important issue, not just health-related, for patients
with haemophilia. Poor medication adherence to long-term therapies limits the potential of …

Background New treatments for patients with bleeding disorders (PWB) have emerged,
including products with extended half‐life and subcutaneous administration. These less …

J Haem Pract 2020; 7 (1). doi: 10.17225/jhp00152 www. haemnet. com 93 diaries, and 2)
objective report of inventory ordered from Canadian Blood Services. Stepwise regression …