Partnering with patients in clinical trials of pain treatments: a narrative review

KJ Holzer, C Veasley, RD Kerns, RR Edwards… - Pain, 2022 - journals.lww.com
The interest and the rationale for meaningful engagement of patients as partners in clinical
trials of pain treatments has been increasing. No specific guidance on patient engagement …

Establishing patient partners' roles on research teams: a scoping review

G Tobiano, BM Gillespie, J Carlini, R Muir… - Research Involvement …, 2024 - Springer
Background There are a myriad of ways patient partners can enact their roles on research
teams. International guidelines emphasize the need for a collaborative approach to …

Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation

D Feldman, P Kruger, L Delbecque, A Duenas… - Research Involvement …, 2021 - Springer
Background The effective impact of patient engagement (PE) across the medicines
development continuum is widely acknowledged across diverse health stakeholder groups …

Making the patient voice heard in a research consortium: experiences from an EU project (IMI-APPROACH)

J Taylor, S Dekker, D Jurg, J Skandsen… - Research involvement …, 2021 - Springer
Abstract APPROACH is an EU-wide research consortium with the goal to identify different
subgroups of knee osteoarthritis to enable future differential diagnosis and treatment. During …

Alignment of patient‐centredness definitions with real‐life patient and clinician experiences: A qualitative study

J Babione, D Panjwani, S Murphy, J Kelly… - Health …, 2023 - Wiley Online Library
Introduction Patient‐centred care (PCC) has come to the forefront for many institutions,
funding agencies and clinicians, and is integrated into care. Does a disconnect in …

[HTML][HTML] Community-and patient-partner engagement in women's cardiovascular disease research: a rapid review of the evidence

M Parry, T Owadally, A O'Hara, N Nickerson, D Hart - CJC open, 2024 - Elsevier
The primary objective of this rapid review is to describe community-partner and patient-
partner engagement in women's cardiovascular disease (CVD) research. Secondary …

Integrating patient-centred research in the Canadian cancer trials group

J Needham, J Taylor, D Nomikos - Current Oncology, 2021 - mdpi.com
The inclusion of patients as partners in research is a key link in the delivery of patient-
centred care in healthcare systems. Despite genuine intentions to engage patients in …

Patient and patient group engagement in cancer clinical trials: a stakeholder charter

S Michaud, J Needham, S Sundquist, D Johnson… - Current …, 2021 - mdpi.com
Background—to guide the implementation of patient centricity and engagement in cancer
clinical trials (CTs) and to operationalize the Canadianized version of the Clinical Trials …

[HTML][HTML] Improving shared decision making for lung cancer treatment by developing and validating an open-source web based patient decision aid for stage I–II non …

I Halilaj, A Ankolekar, A Lenaers, A Chatterjee… - Frontiers in Digital …, 2024 - frontiersin.org
The aim of this study was to develop and evaluate a proof-of-concept open-source
individualized Patient Decision Aid (iPDA) with a group of patients, physicians, and …

Qualitative Comparison of Perceptions Regarding Patient Engagement for Patient Safety by Physicians, Nurses, and Patients

SG Jang, M Ock, S Kim - Patient preference and adherence, 2024 - Taylor & Francis
Purpose Patient engagement in ensuring patient safety is widely acknowledged, there is still
a need to explore how perceptions of patient engagement vary among different stakeholders …