The ethics of research biobanking: a critical review of the literature

K Hoeyer - Biotechnology and Genetic Engineering Reviews, 2008 - Taylor & Francis
Human tissue has been stored and used for research on a regular basis for more than 80
years. During the 1990s, collections of human tissue suddenly became framed as ethical …

Balancing access to health data and privacy: a review of the issues and approaches for the future

J Lane, C Schur - Health services research, 2010 - Wiley Online Library
Background. There has been a dramatic increase in the types of microdata, and this holds
great promise for health services research. However, legislative efforts to protect individual …

Making data sharing work: the FCP/INDI experience

M Mennes, BB Biswal, FX Castellanos, MP Milham - Neuroimage, 2013 - Elsevier
Over a decade ago, the fMRI Data Center (fMRIDC) pioneered open-access data sharing in
the task-based functional neuroimaging community. Well ahead of its time, the fMRIDC effort …

Strategies to address participant misrepresentation for eligibility in Web‐based research

J Kramer, A Rubin, W Coster, E Helmuth… - … journal of methods …, 2014 - Wiley Online Library
Emerging methodological research suggests that the World Wide Web (“Web”) is an
appropriate venue for survey data collection, and a promising area for delivering behavioral …

Blockchain based secret-data sharing model for personal health record system

TT Thwin, S Vasupongayya - 2018 5th International conference …, 2018 - ieeexplore.ieee.org
The blockchain systems are analyzed under the context of the personal health record
system (PHRs) requirements. The transparent property of blockchain may cause the privacy …

When snowball sampling leads to an avalanche of fraudulent participants in qualitative research

JS Sefcik, Z Hathaway… - International journal of …, 2023 - Wiley Online Library
Background Fraudulent research participants create negative consequences for the rigour
and soundness of research. Aims A case study is presented from a qualitative study where …

Use of supplemental vitamin D among infants breastfed for prolonged periods

JA Taylor, LJ Geyer, KW Feldman - Pediatrics, 2010 - publications.aap.org
OBJECTIVES: To determine the rate of vitamin D supplementation in predominantly
breastfed children. To identify patient characteristics, parental beliefs, and practitioner …

Building a national electronic medical record exchange system–experiences in Taiwan

YCJ Li, JC Yen, WT Chiu, WS Jian… - Computer methods and …, 2015 - Elsevier
There are currently 501 hospitals and about 20,000 clinics in Taiwan. The National Health
Insurance (NHI) system, which is operated by the NHI Administration, uses a single-payer …

Comparing potentially avoidable hospitalization rates related to ambulatory care sensitive conditions in Switzerland: the need to refine the definition of health …

Y Eggli, B Desquins, E Seker, P Halfon - BMC health services research, 2014 - Springer
Background Regional rates of hospitalization for ambulatory care sensitive conditions
(ACSC) are used to compare the availability and quality of ambulatory care but the risk …

Emergent challenges in determining costs for economic evaluations

JC Jacobs, PG Barnett - Pharmacoeconomics, 2017 - Springer
This paper describes methods of determining costs for economic evaluations of healthcare
and considers how cost determination is being affected by recent developments in …