Supporting end of life decision making: Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability

J Watson, E Wilson, N Hagiliassis - Journal of Applied …, 2017 - Wiley Online Library
Background The United Nations Convention on the Rights of Persons with Disabilities
(UNCRPD) promotes the use of supported decision making in lieu of substitute decision …

Placing the preferences of people with profound intellectual and multiple disabilities at the center of end-of-life decision making through storytelling

J Watson, H Voss, MJ Bloomer - Research and Practice for …, 2019 - journals.sagepub.com
With a focus on the use of narrative approaches, this article is a commentary on decision-
making support for people with profound intellectual and multiple disability (PIMD) at the end …

Communicative interaction with and without eye-gaze technology between children and youths with complex needs and their communication partners

YH Hsieh, M Borgestig, D Gopalarao… - International journal of …, 2021 - mdpi.com
Use of eye-gaze assistive technology (EGAT) provides children/youths with severe motor
and speech impairments communication opportunities by using eyes to control a …

Reconciling communication repertoires: navigating interactions involving persons with severe/profound intellectual disability, a classic grounded theory study

AM Martin, T Andrews, J Goldbart… - Journal of intellectual …, 2022 - Wiley Online Library
Background A rights‐based agenda, informed by the UNCRPD, that advocates person‐
centredness, inclusion, empowerment and self‐determination is shaping service provision to …

Developing the personal narratives of children with complex communication needs associated with intellectual disabilities: What is the potential of Storysharing®?

K Bunning, L Gooch, M Johnson - Journal of Applied Research …, 2017 - Wiley Online Library
Background Sharing personal experience in narrative is challenging for individuals with
intellectual disabilities. The aim was to investigate the potential of Storysharing® …

Turn-taking and communication modes of students and staff in group activities at non-inclusive schools for students with intellectual disability

S Wallin, H Hemmingsson, G Thunberg… - Augmentative and …, 2024 - Taylor & Francis
Most students with intellectual and communicative disability who rely on augmentative and
alternative communication (AAC) attend non-inclusive school settings. Little is known about …

Barriers and facilitators in health education for adults with intellectual disabilities—a qualitative study

H Bergström, LS Elinder… - Health Education Research, 2014 - academic.oup.com
The aim of this study was to explore barriers and facilitators in the implementation of a health
course for adults with mild or moderate intellectual disabilities. An inductive qualitative …

Speech and language therapists' approaches to communication intervention with children and adults with profound and multiple learning disability

J Goldbart, D Chadwick, S Buell - International journal of …, 2014 - Wiley Online Library
Background People with profound intellectual and multiple disabilities (PMLD) have
communication impairments as one defining characteristic. Aims To explore speech and …

An exploration of the use of eye gaze and gestures in females with Rett syndrome

A Urbanowicz, J Downs, S Girdler, N Ciccone… - Journal of Speech …, 2016 - ASHA
Purpose This study investigated the communicative use of eye gaze and gestures in females
with Rett syndrome. Method Data on 151 females with Rett syndrome participating in the …

The content of goals in individual educational programs for students with complex communication needs

N Klang, C Rowland, M Fried-Oken… - Augmentative and …, 2016 - Taylor & Francis
The aim of the study was to explore the contents of communication-related goals in
individualized education programs (IEPs) for students with complex communication needs …