Palliative care and neurology: time for a paradigm shift

I Boersma, J Miyasaki, J Kutner, B Kluger - Neurology, 2014 - AAN Enterprises
Palliative care is an approach to the care of patients and families facing progressive and
chronic illnesses that focuses on the relief of suffering due to physical symptoms …

Hospice care access inequalities: a systematic review and narrative synthesis

J Tobin, A Rogers, I Winterburn, S Tullie… - BMJ supportive & …, 2022 - spcare.bmj.com
Background Inequalities in access to hospice care is a source of considerable concern;
white, middle-class, middle-aged patients with cancer have traditionally been over …

Researching minoritised communities in palliative care: An agenda for change

J Koffman, S Bajwah, JM Davies… - Palliative …, 2023 - journals.sagepub.com
Background: Palliative care access, experiences and outcomes of care disadvantage those
from ethnically diverse, Indigenous, First nation and First people communities. Research into …

Parkinson disease patients' perspectives on palliative care needs: What are they telling us?

I Boersma, J Jones, J Carter, D Bekelman… - Neurology: Clinical …, 2016 - AAN Enterprises
Background: A growing body of literature suggests that patients with Parkinson disease (PD)
have many unmet needs under current models of care that may be addressed through …

EAN guideline on palliative care of people with severe, progressive multiple sclerosis

A Solari, A Giordano, J Sastre-Garriga… - Journal of palliative …, 2020 - liebertpub.com
Background and Purpose: Patients with severe, progressive multiple sclerosis (MS) have
complex physical and psychosocial needs, typically over several years. Few treatment …

Reversal of English trend towards hospital death in dementia: a population-based study of place of death and associated individual and regional factors, 2001–2010

KE Sleeman, YK Ho, J Verne, W Gao, IJ Higginson - BMC neurology, 2014 - Springer
Background England has one of the highest rates of hospital death in dementia in Europe.
How this has changed over time is unknown. This study aimed to analyse temporal trends in …

“I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study

J Koffman, C Penfold, L Cottrell, B Farsides, CJ Evans… - Plos one, 2022 - journals.plos.org
Background Little is known about how people with multiple sclerosis (MS) and their families
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …

Palliative care and Parkinson's disease: meeting summary and recommendations for clinical research

BM Kluger, S Fox, S Timmons, M Katz… - Parkinsonism & related …, 2017 - Elsevier
Introduction Palliative care is an approach to caring for patients and families affected by
serious illnesses that focuses on the relief of suffering through the management of medical …

Palliative care for Parkinson's disease: has the time come?

JM Miyasaki, B Kluger - Current neurology and neuroscience reports, 2015 - Springer
Although Parkinson's disease (PD) is traditionally viewed as a movement disorder which
affects quality of life, recent literature has revealed an increased mortality, a high burden of …

[HTML][HTML] The need for palliative care in Ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions

PM Kane, BA Daveson, K Ryan, R McQuillan… - Journal of pain and …, 2015 - Elsevier
Context Over the history of palliative care provision in Ireland, services have predominantly
provided care to those with cancer. Previous estimates of palliative care need focused …