Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia

PM Fortin, SA Fisher, KV Madgwick… - Cochrane Database …, 2018 - cochranelibrary.com
Background Regularly transfused people with sickle cell disease (SCD) and people with
thalassaemia (who are transfusion‐dependent or non‐transfusion‐dependent) are at risk of …

Health-related quality of life in children and adolescents with β-thalassemia major on different iron chelators in Basra, Iraq

HAI Abdul-Zahra, MK Hassan… - Journal of pediatric …, 2016 - ingentaconnect.com
Few studies have investigated the quality of life of children with thalassemia in the Middle
East or Mediterranean region, especially Iraq. Therefore, this study was performed to assess …

Patient-reported outcome measures in pediatric non-malignant hematology: a systematic review

JY Kinahan, JMI Graham, YV Hébert… - Journal of Pediatric …, 2021 - journals.lww.com
Patient-reported outcome measures (PROMs) are questionnaires completed by patients or
caregivers without influence by health care professionals. As such, PROMs show subjective …

[PDF][PDF] Control of thalassemia in India

RB Colah, A Gorakshakar - Thalassemia Reports, 2014 - academia.edu
The β-thalassemias and sickle cell disorders pose a major health burden in the large and
diverse Indian population. Education programs for awareness generation are being done by …

Prenatal diagnosis of HbE-β-thalassemia: experience of a center in Western India

R Colah, A Nadkarni, A Gorakshakar, P Sawant… - Indian Journal of …, 2018 - Springer
The clinical presentation of HbE-β-thalassemia is extremely variable, however, many cases
are severe and transfusion dependent. We offered prenatal diagnosis to 108 couples, 20 of …

Improving laboratory and clinical hematology services in resource limited settings

A Allen, S Allen, N Olivieri - Hematology/Oncology Clinics, 2016 - hemonc.theclinics.com
Background The recommendations of this article are based in part upon work in the
thalassemias, inherited disorders of hemoglobin that are widely prevalent in Asia, which …

Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia

LJ Geneen, C Dorée… - Cochrane Database of …, 2023 - cochranelibrary.com
Background Regularly transfused people with sickle cell disease (SCD) and people with
thalassaemia are at risk of iron overload. Iron overload can lead to iron toxicity in vulnerable …

Health-related quality of life in children and adolescents with β-thalassemia major on different iron chelators in Basra, Iraq

AI Hadeel, KH Mea'ad… - Journal of pediatric …, 2016 - journals.lww.com
Few studies have investigated the quality of life of children with thalassemia in the Middle
East or Mediterranean region, especially Iraq. Therefore, this study was performed to assess …

During the venture of prenatal diagnosis of thalassemia, a vis-à-vis elucidated collage of genetic polymorphism of West Bengal, India.

RB Rajlaxmi Basu, AB Arunangshu Biswas… - 2017 - cabidigitallibrary.org
Abstract Introduction: Molecular screening of Thalassemia is a burning issue especially for
developing country where birth rate is high and most of the victims are from rural and from …

[PDF][PDF] During The Venture of Prenatal Diagnosis of Thalassemia, a vis-à-vis Elucidated Collage of Genetic Polymorphism of West Bengal, India.

R Basu, A Biswas, S Chakrabarti… - International Journal of …, 2017 - pdfs.semanticscholar.org
ABSTRACT Introduction: Molecular screening of Thalassemia is a burning issue especially
for developing country where birth rate is high and most of the victims are from rural and …