One of the key features of the contemporary data economy is the widespread circulation of
data and its interoperability. Critical data scholars have analysed data repurposing practices …

The last decade has seen a range of health policy initiatives relating to personalised
medicine. There is an emerging body of studies that demonstrates the continued importance …

Names: Amin, Ash, editor.| Howell, Philip, 1965–editor. Title: Releasing the commons:
rethinking the futures of the commons/edited by Ash Amin and Philip Howell. Description …

This paper examines how gender dynamics shape human tissue donation for research and
for human health. Drawing on research investigating the donation of different types of bodily …

According to surveys and opinion polls, citizens in Nordic welfare societies have positive,
supportive attitudes towards medical research and biobanking. In Finland, it was expected …

This study examines how the institutional context informs the ways in which healthy
recipients relate to genomic information. Through focus group data, it considers the trend of …

CONCLUSION Together, these commitments provide a framework for thinking about
underutilization as a professional ethical issue in biobanking. None alone captures the full …

Background Engagement is important within cohort studies for a number of reasons. It is
argued that engaging participants within the studies they are involved in may promote their …

The collection and use of tissue samples is by no means a new phenomenon (1, 2). As an
object of political interest and action, the international preoccupation and focus on …

Recent trends in biobanking indicate that the practices associated with the collection and
use of human tissue samples and related health information are increasingly becoming …