Community-based participatory research (CBPR) to enhance participation of racial/ethnic minorities in clinical trials: A 10-year systematic review
There has not been a significant improvement in the rate of clinical trial accrual in more than
20 years. Worse, the challenge of inadequate representation among racial and ethnic …
20 years. Worse, the challenge of inadequate representation among racial and ethnic …
Genomic research through an indigenous lens: understanding the expectations
NA Garrison, M Hudson, LL Ballantyne… - Annual review of …, 2019 - annualreviews.org
Indigenous scholars are leading initiatives to improve access to genetic and genomic
research and health care based on their unique cultural contexts and within sovereign …
research and health care based on their unique cultural contexts and within sovereign …
The prevalence of patient engagement in published trials: a systematic review
D Fergusson, Z Monfaredi, K Pussegoda… - Research Involvement …, 2018 - Springer
Plain English summary With the growing movement to engage patients in research,
questions are being asked about who is engaging patients and how they are being …
questions are being asked about who is engaging patients and how they are being …
How do we know what works? A review and critique of current practices in ethics training evaluation
Training is a costly investment. As such, it is of great interest to know the extent to which that
investment is yielding a positive return. Recent meta-analytic efforts have observed that …
investment is yielding a positive return. Recent meta-analytic efforts have observed that …
Strategies for culturally safe research with Native American communities: an integrative review
Background: A history of unethical research and deficit-based paradigms have contributed
to profound mistrust of research among Native Americans, serving as an important call to …
to profound mistrust of research among Native Americans, serving as an important call to …
Review of instructional approaches in ethics education
Increased investment in ethics education has prompted a variety of instructional objectives
and frameworks. Yet, no systematic procedure to classify these varying instructional …
and frameworks. Yet, no systematic procedure to classify these varying instructional …
A meta-analytic comparison of face-to-face and online delivery in ethics instruction: The case for a hybrid approach
Despite the growing body of literature on training in the responsible conduct of research, few
studies have examined the effectiveness of delivery formats used in ethics courses (ie, face …
studies have examined the effectiveness of delivery formats used in ethics courses (ie, face …
Extending research protections to tribal communities
B Saunkeah, JA Beans, MT Peercy… - The American Journal …, 2021 - Taylor & Francis
The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
Influence of ecological momentary assessment study design features on reported willingness to participate and perceptions of potential research studies: an …
Objective Intensive ambulatory assessment, such as ecological momentary assessment
(EMA), is increasingly used to capture naturalistic patient-reported outcomes. EMA design …
(EMA), is increasingly used to capture naturalistic patient-reported outcomes. EMA design …
Genomics, big data, and broad consent: a new ethics frontier for prevention science
Emerging technologies for analyzing biospecimens have led to advances in understanding
the interacting role of genetics and environment on development and individual responsivity …
the interacting role of genetics and environment on development and individual responsivity …