Development of a new social prescribing intervention for families of children with cerebral palsy

K Ostojic, I Karem, BJ Dee‐Price… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To co‐design a social prescribing intervention (the EPIC‐CP programme: Equitable
Pathways and Integrated Care in Cerebral Palsy) with children with cerebral palsy (CP) …

A qualitative study investigating the experiences of unmet social needs for children with cerebral palsy and their families: Perspectives of parents and clinicians

K Ostojic, I Karem, S Paget, L Mimmo… - Disability and …, 2024 - Taylor & Francis
Purpose To explore (i) the impact of unmet social needs on children with cerebral palsy and
their families;(ii) enablers-, and (iii) barriers to addressing unmet social needs. Material and …

Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs

A Yeoh, K Ostojic, A Berg, A Garg… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To determine the frequency, type, clinical, and sociodemographic associations of unmet
social needs in children with cerebral palsy (CP). Method We conducted a cross‐sectional …

Saudi Cerebral Palsy Register (SCPR): Protocol on the Methods and Technical Details

SM Mushta, R Alghamdi, H Almalki, S Waqas… - Journal of Epidemiology …, 2024 - Springer
This protocol presents a comprehensive proposal for the establishment of the Saudi
Cerebral Palsy Register (SCPR), a crucial project for investigating and addressing the …

Income and Household Material Hardship in Children With Medical Complexity

SM Wright, I Zaniletti, EJ Goodwin, RC Gupta… - Hospital …, 2024 - publications.aap.org
BACKGROUND AND OBJECTIVES Household economic hardship negatively impacts child
health but may not be adequately captured by income. We sought to determine the …

Caregiver Knowledge, Attitude, and Behavior toward Care of Children with Cerebral Palsy: A Saudi Arabian Perspective

A Almosallam, AZ Qureshi, B Alzahrani, S AlSultan… - Healthcare, 2024 - mdpi.com
The care of children with cerebral palsy (CP) requires a complex system of care that is not
only dependent on health care resources, but is also strongly influenced by social and …

[PDF][PDF] QALYs in adults with cerebral palsy: Mapping from the San Martin Scale onto the EQ-5D-5L instrument

DMN Díaz, A Adin, ES Iriso - Documento de Trabajo, 2024 - documentos.fedea.net
Background: Responses on health-related quality of life measured by disease-specific
instruments can be mapped onto the EQ-5D-5L to estimate utility values for economic …

Capacity Building goals in young people with cerebral palsy in Australia: Analysis of publicly available National Disability Insurance Scheme data

JY Ding, SL Cleary, PE Morgan - 2024 - researchsquare.com
Background The Australian National Disability Insurance Scheme (NDIS) aims to provide
person-centred care for individuals with disabilities, promoting independence and …

Epidemiology of Cerebral Palsy in the Kingdom of Saudi Arabia

SME Mushta - 2023 - ses.library.usyd.edu.au
Background: Cerebral palsy (CP) is the primary cause of childhood physical disability and
lacks comprehensive epidemiological data in Saudi Arabia and similar regions. This PhD …

[PDF][PDF] Impacts de la paralysie cérébrale d'un enfant sur l'expérience de la parentalité

T Blondel, J Witmeur, A Renders - dial.uclouvain.be
Objectif: L'objectif de cette revue narrative est d'exposer et de s' intéresser aux impacts de la
paralysie cérébrale d'un enfant sur ses parents et d'analyser leur expérience dans les pays …