The ethics of research with children and young people: A practical handbook

P Alderson, V Morrow - 2020 - torrossa.com
Untitled Page 1 Page 2 The Ethics of Research with Children and Young People Page 3 Sara
Miller McCune founded SAGE Publishing in 1965 to support the dissemination of usable …

[HTML][HTML] 'Working relationships' across difference-a realist review of community engagement with malaria research

R Vincent, B Adhikari, C Duddy… - Wellcome open …, 2022 - ncbi.nlm.nih.gov
Background: Community engagement (CE) is increasingly accepted as a critical aspect of
health research, because of its potential to make research more ethical, relevant and well …

How can community engagement in health research be strengthened for infectious disease outbreaks in Sub-Saharan Africa? A scoping review of the literature

S Vanderslott, M Van Ryneveld, M Marchant, S Lees… - BMC public health, 2021 - Springer
Background Community engagement (CE) is a well-established practical and scholarly field,
recognised as core to the science and ethics of health research, for which researchers and …

Reporting of surrogate endpoints in randomised controlled trial reports (CONSORT-Surrogate): extension checklist with explanation and elaboration

AM Manyara, P Davies, D Stewart, CJ Weir, AE Young… - bmj, 2024 - bmj.com
Randomised controlled trials commonly use surrogate endpoints to substitute for a target
outcome (outcome of direct interest and relevance to trial participants, clinicians, and other …

Reporting of surrogate endpoints in randomised controlled trial protocols (SPIRIT-Surrogate): extension checklist with explanation and elaboration

AM Manyara, P Davies, D Stewart, CJ Weir, AE Young… - bmj, 2024 - bmj.com
Randomised controlled trials often use surrogate endpoints to substitute for a target outcome
(an outcome of direct interest and relevance to trial participants, clinicians, and other …

What Makes Community Engagement Effective?: Lessons from the Eliminate Dengue Program in Queensland Australia

PA Kolopack, JA Parsons… - PLoS neglected tropical …, 2015 - journals.plos.org
Background Worldwide, more than 40% of the population is at risk from dengue and recent
estimates suggest that up to 390 million dengue infections are acquired every year. The …

Lessons learned from engaging communities for Ebola vaccine trials in Sierra Leone: reciprocity, relatability, relationships and respect (the four R's)

S Dada, G McKay, A Mateus, S Lees - BMC public health, 2019 - Springer
Background Building trust and engaging the community are important for biomedical trials.
This was core to the set up and delivery of the EBOVAC-Salone and PREVAC Ebola vaccine …

[HTML][HTML] Model framework for governance of genomic research and biobanking in Africa–a content description

A Yakubu, P Tindana, A Matimba, K Littler… - AAS open …, 2018 - ncbi.nlm.nih.gov
Genomic research and biobanking are expanding globally, with a promise to fast-track the
research needed to improve approaches to disease treatment and prevention through …

10 Best resources for community engagement in implementation research

D Glandon, L Paina, O Alonge… - Health policy and …, 2017 - academic.oup.com
Implementation research (IR) focuses on understanding how and why interventions produce
their effects in a given context. This often requires engaging a broad array of stakeholders at …

Reflections on the ethics of participatory visual methods to engage communities in global health research

GF Black, A Davies, D Iskander, M Chambers - Global Bioethics, 2018 - Taylor & Francis
There is a growing body of literature describing conceptual frameworks for working with
participatory visual methods (PVM). Through a global health lens, this paper examines some …