Reducing adolescent and young adult cancer outcome disparities through optimized care delivery: A blueprint from the children's oncology group

MP Beauchemin, ME Roth… - Journal of adolescent and …, 2023 - liebertpub.com
Achieving equitable, high-quality cancer care delivery across socioeconomically and
biologically diverse populations requires multilevel interventions, including those at the …

Evidence‐based consensus guidelines for ALS genetic testing and counseling

J Roggenbuck, BHF Eubank, J Wright… - Annals of Clinical …, 2023 - Wiley Online Library
Objective Advances in amyotrophic lateral sclerosis (ALS) gene discovery, ongoing gene
therapy trials, and patient demand have driven increased use of ALS genetic testing …

Transforming patient-centered cancer care using telehealth: the MATCHES Center

EM Bange, RM Daly, A Lipitz-Snyderman… - JNCI …, 2024 - academic.oup.com
Modern cancer care is costly and logistically burdensome for patients and their families
despite an expansion of technology and medical advances that create the opportunity for …

An evidence‐based practice guideline of the National Society of Genetic Counselors for telehealth genetic counseling

S Green, D Hartzfeld, AB Terry, K Fissell… - Journal of Genetic …, 2023 - Wiley Online Library
There are currently no practice guidelines available for genetic counseling using telehealth
modalities. This evidence‐based practice guideline was developed in response to …

The TeleKidSeq pilot study: incorporating telehealth into clinical care of children from diverse backgrounds undergoing whole genome sequencing

M Sebastin, JA Odgis, SA Suckiel, KE Bonini… - Pilot and Feasibility …, 2023 - Springer
Background The COVID-19 pandemic forced healthcare institutions and many clinical
research programs to adopt telehealth modalities in order to mitigate viral spread. With the …

Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study

T Gonzalez, K Tucker, CE Wakefield… - Journal of …, 2024 - journals.sagepub.com
Introduction Direct-to-patient telegenetics, which uses video conferencing to connect health
professionals directly to patients' devices, has been widely adopted during the pandemic …

[HTML][HTML] Providing genetic testing and genetic counseling for Parkinson's disease to the community

L Cook, J Verbrugge, TH Schwantes-An, J Schulze… - Genetics in …, 2023 - Elsevier
Purpose To evaluate the feasibility and impact of offering genetic testing and counseling to
patients with Parkinson's disease (PD), with the potential to enroll in gene-targeted clinical …

Ensuring equity: Pharmacogenetic implementation in rural and tribal communities

TM Leitch, SR Killam, KE Brown… - Frontiers in …, 2022 - frontiersin.org
Implementation strategies for pharmacogenetic testing have been largely limited to major
academic medical centers and large health systems, threatening to exacerbate healthcare …

Telemedicine versus traditional in-person consultations: Comparison of patient satisfaction rates

U Hamiel, A Eshel Fuhrer, N Landau… - Telemedicine and e …, 2024 - liebertpub.com
Introduction: Data on patient satisfaction with the provision of genetic consultations using
telemedicine are limited, especially those involving children. We compared patient …

[HTML][HTML] Impact of telehealth on the delivery of prenatal care during the COVID-19 pandemic: mixed methods study of the barriers and opportunities to improve health …

CG Craighead, C Collart, R Frankel, S Rose… - JMIR formative …, 2022 - formative.jmir.org
Background: The COVID-19 pandemic brought significant changes in health care,
specifically the accelerated use of telehealth. Given the unique aspects of prenatal care, it is …