Quality of life in children: A critical examination of concepts, approaches, issues, and future directions

JL Wallander, HM Koot - Clinical psychology review, 2016 - Elsevier
The quality of children's life is important both as an investment in the future of our society
and because children constitute an important group of themselves and deserve to …

[HTML][HTML] Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the …

LS Matza, DL Patrick, AW Riley, JJ Alexander, L Rajmil… - Value in Health, 2013 - Elsevier
Background Patient-reported outcome (PRO) instruments for children and adolescents are
often included in clinical trials with the intention of collecting data to support claims in a …

[HTML][HTML] Development of the EQ-5D-Y: a child-friendly version of the EQ-5D

N Wille, X Badia, G Bonsel, K Burström, G Cavrini… - Quality of life …, 2010 - Springer
Purpose To develop a self-report version of the EQ-5D for younger respondents, named the
EQ-5D-Y (Youth); to test its comprehensibility for children and adolescents and to compare …

Member checking with older women: A framework for negotiating meaning

S Doyle - Health care for women international, 2007 - Taylor & Francis
Encouraging participation by older people in the process of conducting research in the aged
care field is paramount for developing an understanding of their experience. While some …

Quality of life domains affected in children with developmental coordination disorder: a systematic review

JG Zwicker, SR Harris… - Child: care, health and …, 2013 - Wiley Online Library
The quality of life (QOL) of children with developmental coordination disorder (DCD) is
largely unknown, but evidence suggests that multiple QOL domains are affected by the …

Generic health-related quality-of-life assessment in children and adolescents: methodological considerations

U Ravens-Sieberer, M Erhart, N Wille, R Wetzel… - …, 2006 - Springer
The health-related quality of life (HR-QOL) of children and adolescents is increasingly
considered a relevant topic for research. Instruments to assess quality of life in children and …

Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes

E Davis, E Waters, A Mackinnon… - … medicine and child …, 2006 - cambridge.org
With an increasing number of paediatric quality of life (QOL) instruments being developed, it
is becoming difficult for researchers and clinicians to select the most appropriate instrument …

Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life

JG Zwicker, M Suto, SR Harris… - British journal of …, 2018 - journals.sagepub.com
Introduction Affecting 5–6% of children, developmental coordination disorder is a
neurodevelopmental disorder characterized by poor motor coordination and difficulty …

Psychometric properties of the KINDL-R questionnaire: results of the BELLA study

M Bullinger, AL Brütt, M Erhart… - European child & …, 2008 - Springer
Background The concept of health-related quality of life (HRQoL) involves the respondents'
perception of well-being and functioning in physical, emotional, mental, social, and everyday …

Systematic review of invasive meningococcal disease: sequelae and quality of life impact on patients and their caregivers

KJ Olbrich, D Müller, S Schumacher, E Beck… - Infectious diseases and …, 2018 - Springer
Introduction Invasive meningococcal disease (IMD, septicaemia and/or meningitis) has a
severe acute and long-term burden: 5–10% of patients die within 48 h, and long-term …