Perspectives of adolescent and young adult cancer survivors: review of community-based discussion boards

A Smith, M Fogarasi, MB Lustberg… - Journal of Cancer …, 2022 - Springer
Purpose Given the overall increase in the number of adolescent and young adult (AYA)
cancer survivors, there has been a growing interest in identifying and implementing effective …

Health care transitions among adolescents and young adults with cancer

MJ Ehrhardt, DN Friedman, MM Hudson - Journal of Clinical …, 2024 - ascopubs.org
Survivors of adolescent and young adult (AYA) cancers, defined as individuals diagnosed
with a primary malignancy between age 15 and 39 years, are a growing population with …

Oncology clinicians' perspectives on online patient portal use in pediatric and adolescent cancer

BA Sisk, C Bereitschaft, M Enloe, G Schulz… - JCO clinical cancer …, 2023 - ascopubs.org
PURPOSE Online patient portals represent widely available communication tools in
pediatric oncology. Previous studies have not evaluated clinicians' perspectives on portal …

Implementation of a pilot clinic for pediatric to adult cancer survivorship transitions

AH Jin, PJ Simon, A Clayton, C Benedict… - Journal of Adolescent …, 2023 - liebertpub.com
Childhood cancer survivors are recommended to have lifelong survivorship care, yet many
become disengaged during pediatric to adult care transitions. We implemented a pilot clinic …

A qualitative study of young childhood cancer survivors and their parents' experiences with treatment‐related late effects in everyday life post‐treatment

NN Petersen, H Hansson, HC Lie… - Journal of advanced …, 2022 - Wiley Online Library
Aims The purpose of this secondary analysis was to explore how young cancer survivors
and their parents experience and manage treatment‐related late effects in daily life post …

Adolescent young adult acute lymphoblastic leukemia survivors develop innovative solutions for unmet needs

T Brown, S Ramocan, R Block… - Journal of Adolescent and …, 2023 - liebertpub.com
Adolescent young adult (AYA) cancer survivors continue to have substantive unmet needs.
Literature and insights from a task force of survivors, caregivers, and survivor advocates …

Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative interview study of parents

KT Sadak, M Gemeda, MC Grafelman… - Cancer …, 2021 - Wiley Online Library
Background Survivor‐focused care for adolescent and young adult (AYA) childhood cancer
survivors (CCS) often involves their parents. Recognizing the importance of parents in the …

Self protective health care in childhood cancer survivors from the perspective of survivors, parents, and professionals: a qualitative study

M Akbarbegloo, M Sanaeefar, M Karimi… - BMC Health Services …, 2024 - Springer
Methods This is a phenomenological study that was conducted in the clinics and cancer
care centers of Urmia and Khoy in Iran. 27 participants were selected by purposive sampling …

Features of Studies on Transition Interventions for Childhood Cancer Survivors: A Scoping Review

J Ma, X Xiao, S Zhou, C Gu, F Liu, H Wang - Cancers, 2024 - mdpi.com
Simple Summary Transition interventions can be used to educate and empower childhood
cancer survivors (CCSs), preparing them for transition toward assuming adult roles and …

Transition readiness of adolescents with cancer: A cross-sectional study based on self-determination theory

J Ma, S Zhou, X Bai, J Lei, H Wang - European Journal of Oncology …, 2024 - Elsevier
Purpose This study aimed to assess the transition readiness of adolescents with cancer in
central China and to explore the paths associated with transition readiness based on self …