Neurodevelopmental outcomes among children with congenital heart disease: at-risk populations and modifiable risk factors

KR Ryan, MB Jones, KY Allen… - World Journal for …, 2019 - journals.sagepub.com
As survivable outcomes among patients with complex congenital heart disease (cCHD)
have continued to improve over the last several decades, more attention is being dedicated …

E-Health: A Game Changer in Fetal and Neonatal Cardiology?

P Padovani, Y Singh, RH Pass, CM Vasile… - Journal of Clinical …, 2023 - mdpi.com
Technological advancements have greatly impacted the healthcare industry, including the
integration of e-health in pediatric cardiology. The use of telemedicine, mobile health …

Optimizing neurodevelopmental outcomes in neonates with congenital heart disease

CM Ortinau, CD Smyser, L Arthur, EE Gordon… - …, 2022 - publications.aap.org
Neurodevelopmental impairment is a common and important long-term morbidity among
infants with congenital heart disease (CHD). More than half of those with complex CHD will …

The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease

SD Roberts, V Kazazian, MK Ford… - The Clinical …, 2021 - Taylor & Francis
Caring for the complex needs of a child with congenital heart disease (CHD) can place
significant burden on the family. Parent mental health and coping have important influences …

Qualitative analysis of perceived impacts on childhood food allergy on caregiver mental health and lifestyle

EM Abrams, E Simons, L Roos, K Hurst… - Annals of Allergy …, 2020 - Elsevier
Background Approximately 8% of children have food allergy. Yet, little is known about how
parents cope with the burden of this disease. Objective This study aimed to describe the …

Wayfinding through the “ocean of the great unknown”: how lactating parents establish a direct breastfeeding relationship with an infant with critical CHD

KM Elgersma, AC McKechnie… - Cardiology in the …, 2023 - cambridge.org
Introduction: Lactating parents of infants hospitalised for critical congenital heart disease
(CHD) face significant barriers to direct breastfeeding. While experiences of directly …

Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study

M Ehrler, C Wettach, I Beck… - Quality of Life …, 2023 - Springer
Aims Having a child with congenital heart disease (CHD) can affect parental health-related
quality of life (HR-QoL). We investigated the long-term trajectories of mental HRQoL (m …

Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta‐synthesis of the qualitative literature

S Dandy, A Wittkowski… - British Journal of Health …, 2024 - Wiley Online Library
Purpose This systematic review aimed to synthesize qualitative research on parents'
psychological experiences following their child's diagnosis of congenital heart disease …

The impact of human milk on outcomes for infants with congenital heart disease: a systematic review

KM Elgersma, AC McKechnie, EN Schorr… - Breastfeeding …, 2022 - liebertpub.com
Background: Infants with congenital heart disease (CHD) are at risk for feeding-related
morbidity and mortality, with growth failure and oral feeding problems associated with poor …

Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome …

E Sood, AJ Lisanti, SE Woolf-King, J Wray… - Cardiology in the …, 2021 - cambridge.org
Diagnosis of CHD substantially affects parent mental health and family functioning, thereby
influencing child neurodevelopmental and psychosocial outcomes. Recognition of the need …