Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008)

L Funk, KI Stajduhar, C Toye, S Aoun… - Palliative …, 2010 - journals.sagepub.com
Family caregivers are crucial for supporting home death. We reviewed published qualitative
research on home-based family caregiving at end of life (1998—2008), synthesizing key …

Family carers providing support to a person dying in the home setting: a narrative literature review

SM Morris, C King, M Turner, S Payne - Palliative medicine, 2015 - journals.sagepub.com
Background: This study is based on people dying at home relying on the care of unpaid
family carers. There is growing recognition of the central role that family carers play and the …

Experiences and challenges of home care nurses and general practitioners in home-based palliative care–a qualitative study

BV Danielsen, AM Sand, JH Rosland, O Førland - BMC palliative care, 2018 - Springer
Background Norway has one of the lowest home death rates in Europe. However, it is the
health authorities´ ambition to increase this by facilitating palliative care at home. The aim of …

'You only have one chance to get it right': A qualitative study of relatives' experiences of caring at home for a family member with terminal cancer

J Totman, N Pistrang, S Smith… - Palliative …, 2015 - journals.sagepub.com
Background: Relatives looking after a terminally ill family member at home face numerous
challenges. Studies into relatives' experiences of home caregiving have been criticised for …

Relatives in end‐of‐life care–part 1: A systematic review of the literature the five last years, January 1999–February 2004

B Andershed - Journal of clinical nursing, 2006 - Wiley Online Library
Aim. To review systematically research conducted during the past five years focusing on the
relatives' situation and needs in end‐of‐life care. Background and aim. That relatives make …

Caring for dying patients outside special palliative care settings: experiences from a nursing perspective

B Wallerstedt, B Andershed - Scandinavian journal of caring …, 2007 - Wiley Online Library
The aim of the study was to describe nurses' experiences in caring for gravely ill and dying
patients outside special palliative care settings. Tape‐recorded qualitative interviews were …

A desire to be seen: family caregivers' experiences of their caring role in palliative home care

M Linderholm, M Friedrichsen - Cancer nursing, 2010 - journals.lww.com
Primary health care is the base of Swedish healthcare, and many terminally ill patients are
cared for at home. A dying relative has a profound impact on his/her family members' …

Silent voices: Family caregivers' narratives of involvement in palliative care

AS Tarberg, M Kvangarsnes, T Hole, M Thronæs… - Nursing …, 2019 - Wiley Online Library
Aim To explore how family caregivers experience involvement in palliative care. Design A
qualitative design with a narrative approach was used. Methods Purposive sampling and …

Culture and end of life care: a scoping exercise in seven European countries

M Gysels, N Evans, AEA Meñaca… - … Ethical Challenges of …, 2020 - taylorfrancis.com
Aim: Culture is becoming increasingly important in relation to end of life (EoL) care in a
context of globalization, migration and European integration. We explore and compare socio …

The experience of family caregivers caring for a terminal patient at home: A research review

JM Martín, M Olano-Lizarraga… - International journal of …, 2016 - Elsevier
Introduction One of the key aspects of the care of terminal patients is care delivered in their
own home. Increasingly, the process of dying is moving from hospitals to homes. Although …