Historical perspectives: shared decision making in the NICU

A Sullivan, C Cummings - NeoReviews, 2020 - publications.aap.org
The ethical dilemmas and predominant frameworks surrounding decision making for
critically ill newborns have evolved substantially over the last 40 years. A shared decision …

Physicians' attitudes and experiences about withholding/withdrawing life-sustaining treatments in pediatrics: a systematic review of quantitative evidence

Y Zhong, A Cavolo, V Labarque, C Gastmans - BMC Palliative Care, 2023 - Springer
Background One of the most important and ethically challenging decisions made for children
with life-limiting conditions is withholding/withdrawing life-sustaining treatments (LST). As …

This wasn'ta split-second decision”: An empirical ethical analysis of transgender youth capacity, rights, and authority to consent to hormone therapy

BA Clark, A Virani - Journal of bioethical inquiry, 2021 - Springer
Inherent in providing healthcare for youth lie tensions among best interests, decision-making
capacity, rights, and legal authority. Transgender (trans) youth experience barriers to …

Physicians perceptions of shared decision-making in neonatal and pediatric critical care

CA Richards, H Starks, MR O'Connor… - American Journal of …, 2018 - journals.sagepub.com
Background: Most children die in neonatal and pediatric intensive care units after decisions
are made to withhold or withdraw life-sustaining treatments. These decisions can be …

Critical decision-making in neonatology and pediatrics: the I–P–O framework

MR Mercurio, CL Cummings - Journal of Perinatology, 2021 - nature.com
Critical decision-making in neonatology and other areas of pediatrics often carries with it a
complex and difficult ethical component. For any treatment under consideration, the …

Deploying triple artemisinin-based combination therapy (TACT) for malaria treatment in Africa: ethical and practical considerations

P Tindana, F de Haan, C Amaratunga, M Dhorda… - Malaria Journal, 2021 - Springer
Malaria remains a major cause of morbidity and mortality in Africa, particularly in children
under five years of age. Availability of effective anti-malarial drug treatment is a cornerstone …

Better than best (interest standard) in pediatric decision making

LF Ross - The Journal of Clinical Ethics, 2019 - journals.uchicago.edu
Healthcare decision making for children has adopted the best interest of the child standard,
a principle originally employed by judges to adjudicate child placement in the case of …

The best interest standard and children: clarifying a concept and responding to its critics

JC Bester - Journal of Medical Ethics, 2019 - jme.bmj.com
This work clarifies the role of the best interest standard (BIS) as ethical principle in the
medical care of children. It relates the BIS to the ethical framework of medical practice. The …

The extremely preterm infant: ethical considerations in life-and-death decision-making

S Albersheim - Frontiers in pediatrics, 2020 - frontiersin.org
Care of the preterm infant has improved tremendously over the last 60 years, with attendant
improvement in outcomes. For the extremely preterm infant,< 28 weeks' gestation, concerns …

The best interest standard is the best we have: why the harm principle and constrained parental autonomy cannot replace the best interest standard in pediatric ethics

JC Bester - The Journal of Clinical Ethics, 2019 - journals.uchicago.edu
While the best interest standard (BIS) enjoys wide endorsement as the ethical and decision-
making standard in pediatrics, it has been criticized as vague and indeterminate. Alternate …