“The dynamic nature of being a person”: An ethnographic study of people living with dementia in their communities

L Birt, G Charlesworth, E Moniz-Cook, P Leung… - The …, 2023 - academic.oup.com
Background and Objectives A dementia diagnosis can affect social interactions. This study
aims to understand how people living with dementia act as social beings within everyday …

Exploring the lived experience: impact of dementia diagnosis on individuals with cognitive impairment-a qualitative study

I Molvik, G Kjelvik, G Selbæk, AMM Rokstad - BMC geriatrics, 2024 - Springer
Objective Although knowledge about the experience of being diagnosed with dementia is
limited, with the expected rise in dementia's prevalence in the coming decades, such …

The memory clinic and psychosocial intervention: Translating past promise into current practices

E Moniz-Cook, G Mountain - Frontiers in Rehabilitation Sciences, 2023 - frontiersin.org
Disproportionate negative effects since the pandemic have amplified the already limited post-
diagnostic support for older people with dementia. This paper summarizes an exploratory …

[HTML][HTML] A web-based self-management app for living well with dementia: user-centered development study

AR Lee, E Csipke, L Yates, E Moniz-Cook… - JMIR Human …, 2023 - humanfactors.jmir.org
Background Self-management, autonomy, and quality of life are key constructs in enabling
people to live well with dementia. This population often becomes isolated following …

Factors Associated With Psychological Wellbeing in Home Care Older Adults With Alzheimer's Disease: A Longitudinal Analysis

Y Guo, J Shi - Journal of Applied Gerontology, 2024 - journals.sagepub.com
The long-term symptoms associated with Alzheimer's disease pose significant challenges to
the psychological wellbeing of patients. This longitudinal study aims to analyze the effects of …

Characteristics of Informal Caregivers and Social Participation of People With Dementia

A Palaza, ED Bouldin, CE Miyawaki… - The …, 2024 - academic.oup.com
Abstract Background and Objectives Social participation is associated with increased quality
of life and well-being but declines following the onset of dementia. Informal caregivers may …

Development of the Impact of Diagnosis Scale–Revised (IODS-R)

SRC Arnold, Y Huang, LP Lawson, JM Higgins… - …, 2024 - journals.sagepub.com
No tools quantify the experience, psychological, and practical impact of receiving a
diagnosis from a non-deficit perspective. Autism is increasingly late diagnosed in adulthood …

Control Beliefs after a Diagnosis of Alzheimer's Disease and Related Dementias: The Need to Foster Resilience

A Reynolds, T Amano, C Scher… - Journal of Applied …, 2024 - journals.sagepub.com
Objectives: Positive adaptation, like higher control beliefs, following a disability diagnosis is
important to buffer against excess disability; however, no study has examined how the …

Race, polygenic risk and their association with incident dementia among older US adults

MA Beydoun, J Weiss, S Banerjee… - Brain …, 2022 - academic.oup.com
Dementia incidence increases steadily with age at rates that may vary across racial groups.
This racial disparity may be attributable to polygenic risk, as well as lifestyle and behavioural …

An outcome‐wide analysis of the effects of diagnostic labeling of Alzheimer's disease and related dementias on social relationships

T Amano, CJ Halvorsen, S Kim… - Alzheimer's & …, 2024 - Wiley Online Library
INTRODUCTION This study examines how receiving a dementia diagnosis influences social
relationships by race and ethnicity. METHODS Using data from the Health and Retirement …