Younger onset dementia: A review of the literature to inform service development

J Sansoni, C Duncan, P Grootemaat… - American Journal of …, 2016 - journals.sagepub.com
This literature review focused on the experience, care, and service requirements of people
with younger onset dementia. Systematic searches of 10 relevant bibliographic databases …

Do people with early stage dementia experience Prescribed Disengagement®? A systematic review of qualitative studies

LF Low, K Swaffer, M McGrath… - International …, 2018 - cambridge.org
Background: Prescribed Disengagement® is the description of the post-diagnostic advice
given to people after a diagnosis of dementia, which explicitly or implicitly suggests that the …

Clinical and cost effectiveness of services for early diagnosis and intervention in dementia

S Banerjee, R Wittenberg - … of Geriatric Psychiatry: A journal of …, 2009 - Wiley Online Library
Background This paper analyses the costs and benefits of commissioning memory services
for early diagnosis and intervention for dementia. Method A model was developed to …

Co-research with older people with dementia: Experience and reflections

D Tanner - Journal of Mental Health, 2012 - Taylor & Francis
Background There is growing evidence that people with dementia want to participate in
research and benefit from their involvement. However, little attention has been given to date …

Experiences of persons with early-onset dementia in everyday life: a qualitative study

A Johannessen, A Möller - Dementia, 2013 - journals.sagepub.com
Background: The small number of existing studies confirms that people with early-onset
dementia (EOD) need special assistance from the beginning and as the disease progresses …

[HTML][HTML] “I Hope That the People Caring for Me Know About Me”: exploring person-centred care and the quality of dementia care

BB Franco, VM Boscart, J Elliott, S Dupuis… - Canadian Geriatrics …, 2022 - ncbi.nlm.nih.gov
Background Person-centred care is at the core of high-quality dementia care but people
living with dementia are often excluded from quality improvement efforts. We sought to …

Negotiating a labyrinth: experiences of assessment and diagnostic journey in cognitive impairment and dementia

K Samsi, C Abley, S Campbell, J Keady… - … journal of geriatric …, 2014 - Wiley Online Library
Objectives There has been a global push towards the earlier diagnosis of dementia, but
there is little understanding of the transitions along the assessment and diagnostic pathway …

“To be, or not to be”: experiencing deterioration among people with young-onset dementia living alone

A Johannessen, K Engedal, PK Haugen… - … journal of qualitative …, 2018 - Taylor & Francis
Having dementia before the age of 65 (YOD) represents a radical break from an age-
normative and expected life course. The disease afflicts the person's identity, threatens the …

Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia

L Carone, V Tischler, T Dening - Dementia, 2016 - journals.sagepub.com
This study investigates the impact of a weekly group providing sport and physical activities
for men with early onset dementia established by Notts County Football in the Community …

Service user involvement in nurse education: perceptions of mental health nursing students

H O'DONNELL, K Gormley - Journal of Psychiatric and Mental …, 2013 - Wiley Online Library
Accessible summary• Professional education and policy strategies increasingly stress the
need for service users to be involved in the education of all nursing students, including …