[HTML][HTML] Opportunities and challenges for the computational interpretation of rare variation in clinically important genes

G McInnes, AG Sharo, ML Koleske, JEH Brown… - The American Journal of …, 2021 - cell.com
Genome sequencing is enabling precision medicine—tailoring treatment to the unique
constellation of variants in an individual's genome. The impact of recurrent pathogenic …

Passive data collection and use in healthcare: A systematic review of ethical issues

NA Maher, JT Senders, AFC Hulsbergen… - International journal of …, 2019 - Elsevier
Introduction Passive data refers to data generated without the active participation of the
subject. This includes data from global positioning systems and accelerometers or metadata …

Reimagining public health in the aftermath of a pandemic

RC Brownson, TA Burke… - American journal of …, 2020 - ajph.aphapublications.org
The coronavirus disease 2019 (COVID-19) pandemic is an unprecedented challenge for
society, affecting those already subject to unacceptable health inequalities and resulting in …

[HTML][HTML] Ethics and privacy implications of using the internet and social media to recruit participants for health research: A privacy-by-design framework for online …

JL Bender, AB Cyr, L Arbuckle, LE Ferris - Journal of medical Internet …, 2017 - jmir.org
Background The Internet and social media offer promising ways to improve the reach,
efficiency, and effectiveness of recruitment efforts at a reasonable cost, but raise unique …

Fit for purpose? The GDPR and the governance of European digital health

L Marelli, E Lievevrouw, I Van Hoyweghen - Policy studies, 2020 - Taylor & Francis
The introduction of the General Data Protection Regulation (GDPR) in 2018 served as the
cornerstone of the new data governance regime of the European Union. Informed by …

Toward better governance of human genomic data

KC O'Doherty, M Shabani, ES Dove, HB Bentzen… - Nature …, 2021 - nature.com
Here, we argue that, in line with the dramatic increase in the collection, storage and curation
of human genomic data for biomedical research, genomic data repositories and consortia …

[HTML][HTML] Research progress and development trend of social media big data (smbd): knowledge mapping analysis based on citespace

Z Wang, D Ma, R Pang, F Xie, J Zhang… - … International Journal of …, 2020 - mdpi.com
Social Media Big Data (SMBD) is widely used to serve the economic and social
development of human beings. However, as a young research and practice field, the …

The debate on the ethics of AI in health care: a reconstruction and critical review

J Morley, C Machado, C Burr, J Cowls… - Available at SSRN …, 2019 - papers.ssrn.com
Healthcare systems across the globe are struggling with increasing costs and worsening
outcomes. This presents those responsible for overseeing healthcare with a challenge …

[HTML][HTML] Protection of the rights of the individual when using facial recognition technology

J Sarabdeen - Heliyon, 2022 - cell.com
Abstract The Facial Recognition Technology (FRT) is used to match a photo of a person's
face through a database that contains picture, name, and other records of someone that are …

[HTML][HTML] Multi scale ethics—why we need to consider the ethics of AI in Healthcare at different scales

M Smallman - Science and Engineering Ethics, 2022 - Springer
Many researchers have documented how AI and data driven technologies have the potential
to have profound effects on our lives—in ways that make these technologies stand out from …