Medical research is increasingly becoming data-intensive; sensitive data are being re-used,
linked and analysed on an unprecedented scale. The current EU data protection law reform …

Informed consent is the result of tumultuous events in both the clinical and research arenas
over the last 100 years. Throughout this time, the notion of informed consent has shifted …

As a relatively new tool, the use of artificial intelligence (AI) in medicine and dentistry has the
potential to significantly transform the healthcare sector. AI has already demonstrated …

Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

Medical artificial intelligence (AI) is considered to be one of the most important assets for the
future of innovative individual and public health care. To develop innovative medical AI, it is …

Dynamic consent forms a comprehensive, tailored approach for interacting with research
participants. We conducted a survey study to inquire how research participants evaluate the …

1Healthcare, Fraunhofer Institute of Software and Systems Engineering, Emil-Figge-Straße
91, 44227 Dortmund, Germany 2ceres, University of Cologne, Albertus-Magnus-Platz …

The implementation of the General Data Protection Regulation (GDPR) raises a series of
challenges for scientific research, in particular for research that is dependent on data. This …

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In the last decade, a wide variety of direct-to-consumer (DTC) genetic tests has become
available that allow consumers to learn about their ancestry, genetic traits and propensity to …