Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: a systematic review of qualitative studies

R Campbell, A Ju, MT King, C Rutherford - Quality of Life Research, 2021 - Springer
Purpose Patient-reported outcome measures (PROMs) are increasingly used in clinical
settings to inform individual patient care. In-depth understanding of end-users' experiences …

[HTML][HTML] Managing the symptom burden associated with maintenance dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) …

R Mehrotra, SN Davison, K Farrington, JE Flythe… - Kidney international, 2023 - Elsevier
Individuals with kidney failure undergoing maintenance dialysis frequently report a high
symptom burden that can interfere with functioning and diminish life satisfaction. Until …

Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study

NE Anderson, D Kyte, C McMullan, P Cockwell… - BMJ open, 2023 - bmjopen.bmj.com
Objectives The use of electronic patient-reported outcome (ePRO) systems to support the
management of patients with chronic kidney disease is increasing. This mixed-methods …

Evaluation of PROMIS Preference Scoring System (PROPr) in patients undergoing hemodialysis or kidney transplant

J Zhang, B Dewitt, E Tang, D Breitner… - Clinical Journal of the …, 2021 - journals.lww.com
Results The mean (SD) age of the 524 participants was 57 (17) years, 58% were male, and
45% were White. Median (interquartile range) score was 0.39 (0.24–0.58) for PROPr, 0.69 …

Discussing results of patient-reported outcome measures (PROMs) between patients and healthcare professionals in routine dialysis care: a qualitative study

EM van der Willik, J Milders, JAJ Bart, WJW Bos… - BMJ open, 2022 - bmjopen.bmj.com
Objectives Patient-reported outcome measures (PROMs) provide insight into patients'
experienced health and needs, and can improve patient–professional communication …

Designing and validating a comprehensive patient-reported outcomes measure for ambulatory cancer settings: the revised Edmonton Symptom Assessment System …

L Watson, C Link, S Qi, A DeIure… - JCO oncology …, 2024 - ascopubs.org
PURPOSE Patient-reported outcomes (PROs) information has been routinely collected in
Cancer Care Alberta (CCA) for years using the revised Edmonton Symptom Assessment …

Outcomes after kidney transplantation, let's focus on the patients' perspectives

Y Wang, JD Snoep, MH Hemmelder… - Clinical Kidney …, 2021 - academic.oup.com
Graft function and patient survival are traditionally the most used parameters to assess the
objective benefits of kidney transplantation. Monitoring graft function, along with therapeutic …

“You need a team”: perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care—a qualitative study

B Baragar, K Schick-Makaroff, B Manns, S Love… - Journal of Patient …, 2023 - Springer
Background Patient-reported outcome measures (PROMs) are standardized instruments
used for assessing patients' perspectives on their health status at a point in time, including …

[HTML][HTML] Understanding health-related quality of life in kidney transplant recipients: the role of symptom experience and illness perceptions

Y Wang, P Van Der Boog… - Transplant …, 2023 - frontierspartnerships.org
The purpose of our article is to investigate the impact of symptom experience on health
related quality of life (HRQOL) in kidney transplant recipients (KTRs) and whether illness …

An evidence-based theory about PRO use in kidney care: a realist synthesis

K Schick-Makaroff, A Levay, S Thompson… - The Patient-Patient …, 2022 - Springer
Background There is international interest on the use of patient-reported outcomes (PROs)
in nephrology. Objectives Our objectives were to develop a kidney-specific program theory …