Background As the life expectancy of adults (aged≥ 18 years) with Down syndrome
increases for a plethora of reasons including recognition of rights, access, and technological …

Background Views can be collected from individuals (self‐report) or others on their behalf
(proxy‐report). Objective We aimed to review the literature on methods and statistical …

Abstract Resumen Background: The quality of life construct provides an ideal conceptual
framework for translating such abstract concepts as self-determination, equity, accessibility …

Background The intellectual disability field has learned about the lives of people with
intellectual disabilities (ID), largely from the perspective of their family and caregivers …

Background Children and adolescents with intellectual disabilities make up a group which is
in urgent need of an adequate operationalisation of the quality of life construct, not only to …

Proxies often underestimate the subjective Quality of Life (QoL) of adults with intellectual
disability (ID). However, little is known about the reasons for these differences. Accordingly …

Quality of life (QoL) has been extensively studied within the field of intellectual disability, with
various theoretical frameworks being developed to guide the provision of appropriate …

Background This study evaluated the role of adaptive behaviour, individual variables (age,
gender and problem behaviours) and environmental variables (living arrangements …

Background The operationalisation of quality of life for people with more severe disabilities
has been acknowledged in the published research for more than two decades. This study …

A good evaluation of the quality of life (QoL) of young people with disability is essential to
detect, monitor and report their support needs in research, and individual, institutional and …