Pediatric palliative care in oncology
Pediatric palliative care aims to alleviate suffering and improve the quality of life of children
with serious disease and increase support for their parents and other family members …
with serious disease and increase support for their parents and other family members …
Specialist paediatric palliative care for children and young people with cancer: a mixed-methods systematic review
Background: Specialist paediatric palliative care services are promoted as an important
component of palliative care provision, but there is uncertainty about their role for children …
component of palliative care provision, but there is uncertainty about their role for children …
A Qualitative analysis of the experiences of young patients and caregivers confronting pediatric and adolescent oncology diagnosis
I Testoni, AE Nicoletti, M Moscato… - International Journal of …, 2023 - mdpi.com
Epidemiological studies show that new cases of young oncology patients are increasing by
400,000 every year. Psychological literature has shown that receiving an oncological …
400,000 every year. Psychological literature has shown that receiving an oncological …
A summary of pediatric palliative care team structure and services as reported by centers caring for children with cancer
MS Weaver, AR Rosenberg, J Tager… - Journal of palliative …, 2018 - liebertpub.com
Background: Little is known about the composition, availability, integration, communication,
perceived barriers, and work load of pediatric palliative care (PPC) providers serving …
perceived barriers, and work load of pediatric palliative care (PPC) providers serving …
[HTML][HTML] What do parents value regarding pediatric palliative and hospice care in the home setting?
Context Children with life-shortening serious illnesses and medically-complex care needs
are often cared for by their families at home. Little, however, is known about what aspects of …
are often cared for by their families at home. Little, however, is known about what aspects of …
[HTML][HTML] Development of a pediatric palliative care curriculum and dissemination model: education in palliative and end-of-life care (EPEC) pediatrics
SJ Friedrichsdorf, S Remke, J Hauser, L Foster… - Journal of pain and …, 2019 - Elsevier
Context Most children living and dying with serious illnesses experience high burden of
distressing symptoms. Many seriously ill children and their families do not have access to …
distressing symptoms. Many seriously ill children and their families do not have access to …
The association between quality of life (QOL) and health literacy among junior middle school students: a cross-sectional study
M Ran, L Peng, Q Liu, M Pender, F He, H Wang - BMC public health, 2018 - Springer
Background Lower health literacy is associated with poor quality of life (QOL) among
patients with chronic disease; little is known about this relationship among the general …
patients with chronic disease; little is known about this relationship among the general …
[HTML][HTML] Natural language processing and machine learning methods to characterize unstructured patient-reported outcomes: validation study
Background Assessing patient-reported outcomes (PROs) through interviews or
conversations during clinical encounters provides insightful information about survivorship …
conversations during clinical encounters provides insightful information about survivorship …
Pediatric palliative oncology: the state of the science and art of caring for children with cancer
Pediatric palliative oncology: the state of the science and... : Current Opinion in Pediatrics
Pediatric palliative oncology: the state of the science and art of caring for children with cancer …
Pediatric palliative oncology: the state of the science and art of caring for children with cancer …
The relationship between household income and patient‐reported symptom distress and quality of life in children with advanced cancer: a report from the PediQUEST …
MF Ilowite, H Al‐Sayegh, C Ma, V Dussel… - Cancer, 2018 - Wiley Online Library
Background Children with advanced cancer experience high symptom distress, which
negatively impacts their health‐related quality of life (HRQOL). To the authors' knowledge …
negatively impacts their health‐related quality of life (HRQOL). To the authors' knowledge …