Background We aimed to synthesise data on issues related to stakeholder perceptions of
consent for the use of secondary data. To better understand the current literature available …

As healthcare becomes increasingly digitized, the promise of improved care enabled by
technological advances inevitably must be traded off against any unintended negative …

Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Background Nowadays, a number of mechanisms and tools are being used by health care
organizations and physicians to electronically exchange the personal health information of …

Concerns about privacy may deter people from participating in genetic research.
Recruitment and retention of biobank participants requires understanding the nature and …

This study validates and extends the latest unified theory of acceptance and use of
technology (UTAUT2) with the privacy calculus model. To evaluate the adoption of …

Importance As health information technology grows, secondary uses of personal health
information offer promise in advancing research, public health, and health care. Public …

Offering compelling practical and legal reasons why de-identification should be one of the
main approaches to protecting patients' privacy, this book outlines a proven, risk-based …

New models of healthcare delivery such as accountable care organizations and patient-
centered medical homes seek to improve quality, access, and cost. They rely on a robust …

Abstract Background The development of Electronic Health Records (EHRs) forms an
integral part of the information strategy for the National Health Service (NHS) in the UK, with …