Early intervention for children with intellectual disabilities: An update

MJ Guralnick - Journal of Applied Research in Intellectual …, 2017 - Wiley Online Library
This article provides an update on advances in both developmental and intervention science
that have occurred in the field of early intervention for children with developmental delays in …

Language development and fragile X syndrome: Profiles, syndrome‐specificity, and within‐syndrome differences

L Abbeduto, N Brady, ST Kover - Mental retardation and …, 2007 - Wiley Online Library
Fragile X syndrome (FXS) is the leading inherited cause of mental retardation. In this article,
we review what is known about the language and related problems of individuals with FXS …

Positive impact of intellectual disability on families

J Blacher, BL Baker - American Journal on Mental …, 2007 - meridian.allenpress.com
Understanding positive, as well as negative, impact of a child with mental retardation will
lead to a more balanced view of families and disability. In two studies we examined parents' …

Psychological well‐being in fathers of adolescents and young adults with Down Syndrome, Fragile X syndrome, and autism

SL Hartley, MM Seltzer, L Head, L Abbeduto - Family relations, 2012 - Wiley Online Library
The psychological well‐being of fathers of children with developmental disabilities remains
poorly understood. The present study examined depressive symptoms, pessimism, and …

Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay

M Feldman, L McDonald, L Serbin… - Journal of …, 2007 - Wiley Online Library
Background Despite extensive research with families raising children with or at risk for
developmental delay (DD), it is not clear whether primary caregivers of these children are at …

Parents' experience of the diagnostic process for autistic spectrum disorders

HJ Braiden, J Bothwell, J Duffy - Child Care in Practice, 2010 - Taylor & Francis
Parental perceptions of receiving a diagnosis for their child have been widely researched,
with results suggesting high levels of dissatisfaction. Such research has focused upon …

Parental experiences after prenatal diagnosis of fetal abnormality

J Hodgson, BJ McClaren - Seminars in Fetal and Neonatal Medicine, 2018 - Elsevier
For many pregnant women, prenatal testing is a routine component of contemporary
pregnancy care. Receiving a prenatal diagnosis is frequently associated with intense …

Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome

P Minnes, K Steiner - Child: care, health and development, 2009 - Wiley Online Library
Background International research in recent years has begun to focus on the medical
problems of individuals with intellectual disabilities and on family stress in accessing health …

Receiving the initial Down syndrome diagnosis: a comparison of prenatal and postnatal parent group experiences

BS Nelson Goff, N Springer, LC Foote… - Mental …, 2013 - meridian.allenpress.com
This study explored the preliminary experiences of parents upon learning of their child's
diagnosis of Down syndrome. Qualitative data from a web-based, national survey were …

The role of hope in adaptation to uncertainty: The experience of caregivers of children with Down syndrome

M Truitt, B Biesecker, G Capone, T Bailey… - Patient education and …, 2012 - Elsevier
OBJECTIVE: The goal of this study was to investigate the relationships between perceived
uncertainty, hope, and adaptation in caregivers of children with Down syndrome (DS) …