Courtesy stigma of parents of children with Down syndrome: Adaptation process and transcendent stage

M Watanabe, C Kibe, M Sugawara… - Journal of Genetic …, 2022 - Wiley Online Library
Courtesy stigma, which arises from close connections to people with stigmatized
characteristics, negatively affects interpersonal relations. This study aimed to evaluate …

Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey

E Marcus, A Latos-Bielenska, A Jamry-Dziurla, I Barišić… - BMC pediatrics, 2022 - Springer
Background Parents of children who have a congenital anomaly can experience significant
worry about their child's health. Access to clear, helpful, and trustworthy information can …

Experiences of parents and prospective parents when receiving a diagnosis of Down syndrome for their child in the perinatal period: a qualitative systematic review …

B Robinette, M Palokas, R Christian… - JBI Evidence …, 2022 - journals.lww.com
Objective: The objective of this review is to synthesize qualitative evidence regarding the
experiences of parents and prospective parents when receiving a diagnosis of Down …

Listening to the voices of mothers in Indonesia: Qualitative content analysis of experiences in parenting children with down syndrome

MA Subu, E Lubis, T Mustikowati, S Marianna… - Journal of Pediatric …, 2024 - Elsevier
Introduction Generally, mothers provide the majority of caring for children who have Down
syndrome. They pose challenges not only with regard to the acceptability of the child …

Dinamika Kebahagiaan (Happiness) pada Ibu yang Memiliki Anak Down Syndrome

YDS Wijaya, E Prasetyo - EXPERIENTIA: Jurnal Psikologi …, 2021 - journal.ukwms.ac.id
Kebahagiaan menjadi salah satu tujuan hidup bagi mayoritas individu yang bisa dicapai
dengan membentuk persepsi positif terhadap segala sesuatu yang terjadi dalam kehidupan …

Vivência de mães com filhos diagnosticados com síndrome de down

CBL Benevides, LCB Cardoso… - Nursing Edição …, 2020 - revistanursing.com.br
Objetivo: compreender a vivência de mães de filhos com síndrome de Down. Método:
pesquisa descritiva e exploratória, qualitativa, desenvolvida com mães de crianças …

Health literacy in parents of children with Down syndrome

G Akça, A Sanri, U Akca - Advances in Mental Health and Intellectual …, 2024 - emerald.com
Purpose This study aims to evaluate the health literacy level of the parents of children
diagnosed with Down syndrome (DS) within one institution in Turkey. Design/methodology …

Experiences of fatigue among people with chronic obstructive pulmonary disease: a qualitative systematic review protocol

L Hamari, H Siltanen, K Heikkilä… - JBI Evidence …, 2022 - journals.lww.com
Objective: The objective of this review is to explore the experiences of adults with chronic
obstructive pulmonary disease living with fatigue. Introduction: Chronic obstructive …

Knowledge, Attitudes and Reported Practices of Mothers with Down Syndrome Children at Kafr El-Sheikh Governorate

A El-Enen, RBM EL-Lassy… - Assiut Scientific Nursing …, 2022 - journals.ekb.eg
Background: Mothers are the main carers for their families, and they have a fundamental
need to be knowledgeable of the potential health issues that their Down syndrome children …

Taking care of the children with Down's syndrome is a painful burden on their mothers

R Abdollahi, S Rasoulpoor - Journal of Nursing Reports in Clinical …, 2024 - jnursrcp.com
Down's syndrome is one of the genetic abnormalities that can cause different degrees of
mental retardation from moderate to severe in children [1]. The incidence of this disorder in …