Electronic health records to facilitate clinical research

MR Cowie, JI Blomster, LH Curtis, S Duclaux… - Clinical Research in …, 2017 - Springer
Electronic health records (EHRs) provide opportunities to enhance patient care, embed
performance measures in clinical practice, and facilitate clinical research. Concerns have …

Privacy protections to encourage use of health-relevant digital data in a learning health system

D McGraw, KD Mandl - NPJ digital medicine, 2021 - nature.com
Abstract The National Academy of Medicine has long advocated for a “learning healthcare
system” that produces constantly updated reference data during the care process. Moving …

[HTML][HTML] A harmonized data quality assessment terminology and framework for the secondary use of electronic health record data

MG Kahn, TJ Callahan, J Barnard, AE Bauck, J Brown… - Egems, 2016 - ncbi.nlm.nih.gov
Objective: Harmonized data quality (DQ) assessment terms, methods, and reporting
practices can establish a common understanding of the strengths and limitations of …

Modelchain: Decentralized privacy-preserving healthcare predictive modeling framework on private blockchain networks

TT Kuo, L Ohno-Machado - arXiv preprint arXiv:1802.01746, 2018 - arxiv.org
Cross-institutional healthcare predictive modeling can accelerate research and facilitate
quality improvement initiatives, and thus is important for national healthcare delivery …

Comparing the 5-year diabetes outcomes of sleeve gastrectomy and gastric bypass: the National Patient-Centered Clinical Research Network (PCORNet) Bariatric …

KM McTigue, R Wellman, E Nauman, J Anau… - JAMA …, 2020 - jamanetwork.com
Importance Bariatric surgery can lead to substantial improvements in type 2 diabetes
(T2DM), but outcomes vary across procedures and populations. It is unclear which bariatric …

[HTML][HTML] Reporting to improve reproducibility and facilitate validity assessment for healthcare database studies V1. 0

SV Wang, S Schneeweiss, ML Berger, J Brown… - Value in health, 2017 - Elsevier
Purpose Defining a study population and creating an analytic dataset from longitudinal
healthcare databases involves many decisions. Our objective was to catalogue scientific …

Recent developments in clinical terminologies—SNOMED CT, LOINC, and RxNorm

O Bodenreider, R Cornet… - Yearbook of medical …, 2018 - thieme-connect.com
Objective: To discuss recent developments in clinical terminologies. SNOMED CT
(Systematized Nomenclature of Medicine Clinical Terms) is the world's largest clinical …

[HTML][HTML] Big data science: opportunities and challenges to address minority health and health disparities in the 21st century

X Zhang, EJ Pérez-Stable, PE Bourne, E Peprah… - Ethnicity & …, 2017 - ncbi.nlm.nih.gov
Addressing minority health and health disparities has been a missing piece of the puzzle in
Big Data science. This article focuses on three priority opportunities that Big Data science …

MIRACUM: medical informatics in research and care in university medicine

HU Prokosch, T Acker, J Bernarding… - … of information in …, 2018 - thieme-connect.com
Introduction: This article is part of the Focus Theme of Methods of Information in Medicine on
the German Medical Informatics Initiative. Similar to other large international data sharing …

PCORnet® 2020: current state, accomplishments, and future directions

CB Forrest, KM McTigue, AF Hernandez… - Journal of Clinical …, 2021 - Elsevier
Abstract Objective To describe PCORnet, a clinical research network developed for patient-
centered outcomes research on a national scale. Study Design and Setting Descriptive …