The representation of traditionally scientifically underserved groups in genomic research
continues to be low despite concerns about equity and social justice and the scientific and …

Summary The Global Alliance for Genomics and Health (GA4GH) aims to accelerate
biomedical advances by enabling the responsible sharing of clinical and genomic data …

Genomic healthcare programmes, both in a research and clinical context, have
demonstrated a pivotal opportunity to prevent, diagnose, and treat rare diseases. However …

Many countries currently invest in technologies and data infrastructures to foster precision
medicine (PM), which is hoped to better tailor disease treatment and prevention to individual …

Objective: The objective of this review was to map the available global evidence on
strategies that nurses can use to facilitate genomics-informed health care to address health …

Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Population-based genomics studies have proven successful in identifying genetic variants
associated with diseases. High-quality biospecimens linked with informative health data …

Institutional review boards need new skills to review data sharing and management plans |
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Our ability to generate genomic data is currently well ahead of our ability to understand what
they mean, raising challenges about how best to engage with them. This article considers …

A latent class analysis on a nationally representative Australian sample (N= 1000) identified
four subgroups (ie classes), ranging from high to low concern about, and willingness to …