The burden of X-linked retinitis pigmentosa on patients and society: a narrative literature review

M Chivers, N Li, F Pan, H Wieffer, R Slowik… - ClinicoEconomics …, 2021 - Taylor & Francis
X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …

[HTML][HTML] Systematic review and meta-synthesis of coping with retinitis pigmentosa: implications for improving quality of life

G Garip, A Kamal - BMC ophthalmology, 2019 - Springer
Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …

[HTML][HTML] Coping strategies, vision-related quality of life, and emotional health in managing retinitis pigmentosa: a survey study

K Anil, G Garip - BMC ophthalmology, 2018 - Springer
Background Retinitis pigmentosa is a group of genetic progressive retinal dystrophies that
may adversely affect daily life. Those with RP should develop adaptive coping strategies to …

Psychological aspects and depression in patients with symptomatic keratoconus

MM Moschos, NS Gouliopoulos… - Journal of …, 2018 - Wiley Online Library
Purpose. To assess the psychological status of keratoconus sufferers and to determine the
relationship between depression and visual impairment in this group of patients. Methods …

The Michigan vision-related anxiety questionnaire: a psychosocial outcomes measure for inherited retinal degenerations

GD Lacy, MF Abalem, CA Andrews… - American journal of …, 2021 - Elsevier
Objective We sought to construct and validate a patient-reported outcome measure for
screening and monitoring vision-related anxiety in patients with inherited retinal …

Psychological aspects and depression in patients with retinitis pigmentosa

M Moschos, A Chatzirallis… - European Journal of …, 2015 - journals.sagepub.com
Purpose To assess the psychological impact and the potential relationship between
depression and visual impairment in patients with retinitis pigmentosa (RP). Methods Our …

[HTML][HTML] Validation of a vision-related activity scale for patients with retinitis pigmentosa

FM Costela, K Pesudovs, MA Sandberg… - Health and Quality of …, 2020 - Springer
Purpose There have been few systematic reports of vision-related activity limitations of
people with retinitis pigmentosa (RP). We report a merging of data from the National Eye …

Living with type I Usher syndrome: insights from patients and their parents

A Roborel de Climens, B Tugaut, A Piscopo… - Ophthalmic …, 2020 - Taylor & Francis
ABSTRACT Background Type 1 Usher syndrome (USH1) is a rare disease and major cause
of genetic deaf-blindness. Deafness is present from birth while retinitis pigmentosa (RP) …

[HTML][HTML] Multitasking compensatory saccadic training program for hemianopia patients: A new approach with 3-dimensional real-world objects

L Mena-Garcia, JC Pastor-Jimeno… - … vision science & …, 2021 - tvst.arvojournals.org
Purpose: To examine whether a noncomputerized multitasking compensatory saccadic
training program (MCSTP) for patients with hemianopia, based on a reading regimen and …

Anxiety and depression in patients with retinitis pigmentosa

P Le, M Nguyen, T Vu, DP Dao… - Journal of …, 2021 - journals.sagepub.com
Purpose: Retinitis pigmentosa (RP) is a chronic progressive disease with no curative
treatments. Understanding the variables involved with improving patients' quality of life is …