A review of the trials which examine early integration of outpatient and home palliative care for patients with serious illnesses

MP Davis, JS Temel, T Balboni… - Annals of palliative …, 2015 - apm.amegroups.org
Background: Palliative care has emerged as care that specifically aims to address gaps
inherent in disease-centered approaches in order to enhance care quality in serious illness …

The impact of poverty and deprivation at the end of life: a critical review

J Rowley, N Richards, E Carduff… - Palliative Care and …, 2021 - journals.sagepub.com
This critical review interrogates what we know about how poverty and deprivation impact
people at the end of life and what more we need to uncover. While we know that people in …

'My wife is my doctor at home': A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting

Y Salifu, K Almack, G Caswell - Palliative medicine, 2021 - journals.sagepub.com
Background: Family caregiving is common globally, but when a family member needs
palliative and end-of-life care, this requires knowledge and expertise in dealing with …

The direct and indirect financial costs of informal cancer care: a scoping review

C Coumoundouros, L Ould Brahim… - Health & social care …, 2019 - Wiley Online Library
Informal caregivers are the primary source of support for cancer patients, providing
assistance with household tasks, medical care and emotional support. These …

Gender and palliative care: a call to arms

M Gott, T Morgan, L Williams - Palliative Care and Social …, 2020 - journals.sagepub.com
There has been a systematic and largely unconscious neglect of gender in palliative care
research, practice and policy. This is despite significant, although previously uncollated …

Equity and the financial costs of informal caregiving in palliative care: a critical debate

C Gardiner, J Robinson, M Connolly, C Hulme… - BMC palliative …, 2020 - Springer
Background Informal caregivers represent the foundation of the palliative care workforce
and are the main providers of end of life care. Financial pressures are among the most …

'Because it's the wife who has to look after the man': A descriptive qualitative study of older women and the intersection of gender and the provision of family caregiving …

LA Williams, LS Giddings, G Bellamy… - Palliative …, 2017 - journals.sagepub.com
Background: Research indicates that women are the primary family caregivers for others at
life's end and, because of ageing populations, will keep fulfilling this role as they age. Yet …

[HTML][HTML] An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers

MA Pesantes, LR Brandt, A Ipince, JJ Miranda… - ENeurologicalSci, 2017 - Elsevier
Introduction Understanding local complexities and challenges of stroke-related caregiving
are essential to develop appropriate interventions. Our study aimed to characterize the …

The 'safe death': an ethnographic study exploring the perspectives of rural palliative care patients and family caregivers

S Rainsford, CB Phillips, NJ Glasgow… - Palliative …, 2018 - journals.sagepub.com
Background: In rural settings, relationships between place and self are often stronger than
for urban residents, so one may expect that rural people would view dying at home as a …

What cost components are relevant for economic evaluations of palliative care, and what approaches are used to measure these costs? A systematic review

C Gardiner, C Ingleton, T Ryan, S Ward… - Palliative …, 2017 - journals.sagepub.com
Background: It is important to understand the costs of palliative and end-of-life care in order
to inform decisions regarding cost allocation. However, economic research in palliative care …