Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review

PS Vig, JY Lim, RWL Lee, H Huang, XH Tan, WQ Lim… - BMC palliative …, 2021 - Springer
Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life

EG Broden, E Mazzola, DD DeCourcey… - Journal of Pediatric …, 2023 - Elsevier
Purpose Parents' perceptions of their child's suffering affect their bereavement experience.
Identifying factors that shape parental perceptions of suffering could help build effective …

'In the hospital there are no care guidelines': experiences and practices in perinatal loss in Spain

M Fernández‐Alcántara, L Schul‐Martin… - … journal of caring …, 2020 - Wiley Online Library
Background and objectives Healthcare professionals play an important role in supporting
and attending to families that experience a perinatal loss. Previous research has identified …

Is death taboo for older Chinese immigrants?

W Zhang - OMEGA-Journal of Death and Dying, 2022 - journals.sagepub.com
Much of the scholarly literature sees death as a taboo topic for Chinese. To test this
assumption, this study held seven focus groups in the Greater Toronto Area in 2017. It found …

[HTML][HTML] Identifying core domains to assess the “quality of death”: a scoping review

A Bhadelia, LE Oldfield, JL Cruz, R Singh… - Journal of pain and …, 2022 - Elsevier
Context There is growing recognition of the value to patients, families, society, and health
systems in providing healthcare, including end-of-life care, that is consistent with both …

Who, what, where, and how? The state of family science in pediatric palliative care

EG Broden, JY Boyden, S Keller, R James… - Journal of Pain and …, 2024 - Elsevier
Context Families are vital providers and recipients of pediatric palliative care (PPC) services.
Understanding the scope and nature of evidence at the intersection of family science and …

The needs of children with terminal illness: A qualitative study

F Adistie, VBM Lumbantobing… - Child Care in Practice, 2020 - Taylor & Francis
Purpose: The response of each child to terminal illness treatment is highly individual. This
will certainly affect the level and type of perceived needs. This study is conducted to …

Parents: wish I had done, wish I had not done, and coping after child NICU/PICU death

D Brooten, JAM Youngblut, C Caicedo… - Journal of the …, 2019 - journals.lww.com
Background and purpose: An infant or child death is devastating for parents. This study
examined parents' wishes regarding what they had or had not done and how they coped 1 …

[图书][B] Bereavement and support: Healing in a group environment

M Hughes - 2013 - taylorfrancis.com
In the early 1970s bereavement support groups were almost unknown. However, the
obvious benefits of the group process for recovery-the mutual support and understanding …