Objectives This article aims to measure the willingness of the Swiss public to participate in personalised health research, and their preferences regarding data management and …
Background Biobanks have recently been established in several low-and middle-income countries (LMICs) in the Arab region of the Middle East. We aimed to explore the views of …
F Gille, C Brall - Journal of Medical Ethics, 2022 - jme.bmj.com
As donor trust legitimises research, trust is vital for research in the fields of biomedicine, genetics, translational medicine and personalised medicine. For parts of the donor …
The preservation of fertility is a clinical issue that has been emerging considerably in recent decades, as the number of patients of childbearing age who risk becoming infertile for many …
Trust is at the centre of the public and health system relationship. The public takes part in trusted health system activities and its trust legitimises health system activities. Examples of …
M Maseme - Data Integrity and Data Governance, 2022 - intechopen.com
Research involving humans often generates considerable data irrespective of the context in which the research is being conducted. This data must be protected from unauthorized …
BK Yadav, W Ng, H Vu, J Fachiroh… - Biopreservation and …, 2023 - liebertpub.com
Biobanking is a relatively newly recognized and innovative branch of science, which includes the collection of samples and associated data from hospitals, diagnostic centers …
S Santoso, SE Pramono… - International …, 2024 - proceeding.unnes.ac.id
Good governance is a critical aspect of effective public administration, significantly impacting the quality of services provided to the community. This study aims to identify and implement …
Research biobanks are collections of human biological samples and personal data on a long-term basis for future scientific research purposes and, therefore, fundamental …