Parent–child agreement across child health-related quality of life instruments: a review of the literature

P Upton, J Lawford, C Eiser - Quality of life research, 2008 - Springer
Aim To systematically review the literature published since 1999 on paediatric health-related
quality of life (HRQL) in relation to parent–child agreement. Methods Literature searches …

The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents

JW Varni, CA Limbers - Pediatric Clinics of North America, 2009 - Elsevier
Health-related quality of life (HRQOL) has been recognized as an important outcome, some
contend the most important outcome for children's health care interventions. The PedsQL …

European Society for Paediatric Gastroenterology, Hepatology and Nutrition guidelines for the evaluation and treatment of gastrointestinal and nutritional …

C Romano, M Van Wynckel, J Hulst… - Journal of pediatric …, 2017 - journals.lww.com
Objectives: Feeding difficulties are frequent in children with neurological impairments and
can be associated with undernutrition, growth failure, micronutrients deficiencies …

Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study

HO Dickinson, KN Parkinson, U Ravens-Sieberer… - The Lancet, 2007 - thelancet.com
Background Little is known about the quality of life (QoL) of disabled children. We describe
self-reported QoL of children with cerebral palsy, factors that influence it, and how it …

Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

A Colver, M Rapp, N Eisemann, V Ehlinger, U Thyen… - The Lancet, 2015 - thelancet.com
Background Children with cerebral palsy who can self-report have similar quality of life
(QoL) to their able-bodied peers. Is this similarity also found in adolescence? We examined …

The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children

JW Varni, TM Burwinkle, M Seid - Expert review of …, 2005 - Taylor & Francis
The PedsQL™ Measurement Model was designed as a modular approach to measuring
pediatric health-related quality of life, and developed to integrate the relative merits of …

Cerebral palsy and aging

P Haak, M Lenski, MJC Hidecker… - … Medicine & Child …, 2009 - Wiley Online Library
Cerebral palsy (CP), the most common major disabling motor disorder of childhood, is
frequently thought of as a condition that affects only children. Deaths in children with CP …

The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module

JW Varni, TM Burwinkle, SJ Berrin… - … medicine and child …, 2006 - cambridge.org
This investigation determined the measurement properties of the Pediatric Quality of Life
Inventory (PedsQL) 3.0 Cerebral Palsy (CP) Module. PedsQL 4.0 Generic Core Scales and …

Parent-reported quality of life of children with cerebral palsy in Europe

C Arnaud, M White-Koning, SI Michelsen, J Parkes… - …, 2008 - publications.aap.org
OBJECTIVE. The goal was to determine whether the type and severity of the child's
impairments and the family's psychosocial, social, and economic characteristics influence …

Quality of life in children with developmental language disorder

P Eadie, L Conway, B Hallenstein… - … journal of language …, 2018 - Wiley Online Library
Background Developmental language disorder (DLD) is common in children, but little is
known about its association with quality of life (QoL) in middle childhood. QoL is a complex …