What is right? Ethics in intellectual disabilities research

KE McDonald, CA Kidney - Journal of Policy and Practice in …, 2012 - Wiley Online Library
There are important benefits to including adults with intellectual disabilities in research.
Calls for their increased participation in research co‐occur with notable discussion about …

[HTML][HTML] Research ethics I: Responsible conduct of research (RCR)—Historical and contemporary issues pertaining to human and animal experimentation

J Horner, FD Minifie - 2011 - ASHA
Purpose In this series of articles—Research Ethics I, Research Ethics II, and Research
Ethics III—the authors provide a comprehensive review of the 9 core domains for the …

Ethics Guidelines for International, Multicenter Research Involving People with Intellectual Disabilities1,2,3,4

AJ Dalton, KR McVilly - Journal of Policy and Practice in …, 2004 - Wiley Online Library
This position statement endorsed by the International Association for the Scientific Study of
Intellectual Disabilities is designed to promote and facilitate research projects affecting and …

[图书][B] Ben-essere disabili. Un approccio positivo all'inclusione

E Ghedin - 2009 - research.unipd.it
Le persone che vivono una condizione di disabilità sono capaci provare ben-essere? È
possibile che le persone con disabilità anche gravi provino sentimenti quali felicità, gioia …

A patient registry for cognitive rehabilitation research: a strategy for balancing patients' privacy rights with researchers' need for access

MF Schwartz, AR Brecher, J Whyte, MG Klein - Archives of physical …, 2005 - Elsevier
Schwartz MF, Brecher AR, Whyte J, Klein MG. A patient registry for cognitive rehabilitation
research: a strategy for balancing patients' privacy rights with researchers' need for access …

A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults

R Milte, D Jemere, K Lay, C Hutchinson, J Thomas… - Quality of Life …, 2023 - Springer
Abstract Purpose Self-Reporting using traditional text-based Quality-of-Life (QoL)
instruments can be difficult for people living with sensory impairments, communication …

Informed consent for research participation in frail older persons

JS Barron, PL Duffey, LJ Byrd, R Campbell… - Aging clinical and …, 2004 - Springer
Informed consent has been the most scrutinized and controversial aspect of clinical research
ethics. Institutional review boards (IRBs), government regulatory agencies, and the threat of …

Informed consent in patients with frailty syndrome

BS Silbert, DA Scott - Anesthesia & Analgesia, 2020 - journals.lww.com
Frailty is present in more than 30% of individuals older than 65 years of age presenting for
anesthesia and surgery, and poses a number of unique issues in the informed consent …

Participant recruitment and retention in rehabilitation research

KR Bell, F Hammond, T Hart, AK Bickett… - American journal of …, 2008 - journals.lww.com
Participant Recruitment and Retention in Rehabilitation Rese... : American Journal of Physical
Medicine & Rehabilitation Participant Recruitment and Retention in Rehabilitation Research …

Including adults with intellectual disabilities in research: Scientists' perceptions of risks and protections

KE McDonald, CA Kidney, SL Nelms… - Journal of Policy and …, 2009 - Wiley Online Library
Social and cognitive characteristics of adults with intellectual disabilities (ID) place them at
risk for inappropriate inclusion in or exclusion from research participation. As we grapple …