Usage and effect of health information exchange: a systematic review

RS Rudin, A Motala, CL Goldzweig… - Annals of internal …, 2014 - acpjournals.org
Background: Health information exchange (HIE) is increasing in the United States, and it is
incentivized by government policies. Purpose: To systematically review and evaluate …

“Let's get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative …

EM Hill, EL Turner, RM Martin, JL Donovan - BMC medical research …, 2013 - Springer
Background Opt-in consent is usually required for research, but is known to introduce
selection bias. This is a particular problem for large scale epidemiological studies using only …

Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care

JS De Moor, AB Mariotto, C Parry, CM Alfano… - … Biomarkers & Prevention, 2013 - AACR
Background: Cancer survivors represent a growing population, heterogeneous in their need
for medical care, psychosocial support, and practical assistance. To inform survivorship …

Screening for psychosocial distress among patients with cancer: implications for clinical practice, healthcare policy, and dissemination to enhance cancer survivorship

SL Ehlers, K Davis, SM Bluethmann… - Translational …, 2019 - academic.oup.com
Accreditation standards are at the forefront of evolving healthcare systems, setting metrics
for high-quality care. Healthcare outcomes (health, experience, cost, provider …

Willingness to exchange health information via mobile devices: findings from a population-based survey

KJ Serrano, M Yu, WT Riley, V Patel… - The Annals of Family …, 2016 - Annals Family Med
PURPOSE The rapid proliferation of mobile devices offers unprecedented opportunities for
patients and health care professionals to exchange health information electronically, but …

Disparities in psychological distress impacting lesbian, gay, bisexual and transgender cancer survivors

C Kamen, KM Mustian, A Dozier, DJ Bowen… - Psycho …, 2015 - Wiley Online Library
Objective Recent studies have highlighted disparities in cancer diagnosis between lesbian,
gay, bisexual and transgender (LGBT) and heterosexual adults. Studies have yet to examine …

The association between patient activation and accessing online health information: results from a national survey of US adults

SG Smith, A Pandit, SR Rush, MS Wolf… - Health …, 2015 - Wiley Online Library
Background There are increasing opportunities for the public to access online health
information, but attitudinal barriers to use are less well‐known. Patient activation is …

[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

R Baines, S Stevens, D Austin, K Anil… - Journal of Medical …, 2024 - jmir.org
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …

Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations

Y Ge, DK Ahn, B Unde, HD Gage… - Journal of the American …, 2013 - academic.oup.com
Background Current image sharing is carried out by manual transportation of CDs by
patients or organization-coordinated sharing networks. The former places a significant …

[HTML][HTML] Implications of patient portal transparency in oncology: qualitative interview study on the experiences of patients, oncologists, and medical informaticists

JM Alpert, BB Morris, MD Thomson, K Matin… - JMIR cancer, 2018 - cancer.jmir.org
Background: Providing patients with unrestricted access to their electronic medical records
through patient portals has impacted patient-provider communication and patients' personal …